Aspergers label being used

I've noticed more posts recently where people are saying they have received an autism diagnosis but then they add Aspergers in brackets.

It has been more than 12 years since it was dropped as a clinical term so I'm wondering why it seems to be talked about more in these last few weeks.

It was just a passing curiosity.

Parents
  • There are differences within the Autism Spectrum Disorder and probably people want to highlight it - which part of ASD they have. There is a big difference between a person, who only does one movement or sound whole day and is unable to do absolutely anything else, and a person, who gets very deep into some topic, even if it’s nothing really useful or productive, but has abilities to learn and function to some extent independently in daily life. 
    I had periods in my life, when I could pace my room whole day literally and not use toilet or eat or drink. My family stopped me from that. But I could do it half day without any problem. I didn’t even know it was half day passed. I also had periods in my childhood and teens, when I could sit long hours and draw floor plans, create some data, or draw tram line schemes with timetables. I had some difficulties in learning, because the subjects were all too much and I needed more breaks and time to process what I heard and red. My therapist mentioned atypical autism to me. 
    I think that the distinct names of conditions within the ASD should stay. Maybe the name of Asperger should be changed, for example to Sukhareva’s name. Grunya Sukhareva was a Soviet (born in Ukraine) child psychiatrist and first to actually identify and describe autism. So maybe her name could replace Asperger. But there are many people, who just identify with this diagnosis as it is, because they received it. And it’s widely used for example “Aspie quiz” - comes from Asperger, or Ritvo Autism Asperger diagnostic scale (RAADS- test) that we all here take and get some results. It’s also used in the diagnostic process. So it’s not that easy to remove this name from the use. I think that maybe there should be a clearer division within the ASD. I red, that in Island the Asperger is still being used as an official distinct diagnosis.

  • I get what you're saying but where would I fit in to the old way? I didn't meet the criteria for Asperger because I had language delay as a child. But I'm fairly intelligent, manage a job and live alone. This is the difficulty with categorising autism. There is always going to be someone that doesn't quite fit in a category.

  • This is the difficulty with categorising autism. There is always going to be someone that doesn't quite fit in a category.

    This is always the case for spectrum conditions. 

    You will have some of the traits at different levels of intensity but if you have enough traits strongly enough for it to be disabling for you then you are given the label of autism in the diagnosis.

    Remember that the diagnosis is, technically, that you are disabled because of your neurodivergence, so it is a label that should open the door to the support you need in an ideal world.

    Our world isn't funded well enough or run well enough to cope however and that leaves us in this weird halfway house when you are diagnosed as disabled and then cut adrift by the health service to sort yourself out on the whole.

    Add in the current societal distaste for so many "needy" people suddenly appearing, the costs for just existing being really high and the lack of availability of affordable private support and it is a quite a difficult place to exist.

    I would hope we can overcome our differences and pull together to help one another at the very least. This is why I give so much time to answer questions here and do charity work with autists in my city to help them transition from school to the real grown-up world.

Reply
  • This is the difficulty with categorising autism. There is always going to be someone that doesn't quite fit in a category.

    This is always the case for spectrum conditions. 

    You will have some of the traits at different levels of intensity but if you have enough traits strongly enough for it to be disabling for you then you are given the label of autism in the diagnosis.

    Remember that the diagnosis is, technically, that you are disabled because of your neurodivergence, so it is a label that should open the door to the support you need in an ideal world.

    Our world isn't funded well enough or run well enough to cope however and that leaves us in this weird halfway house when you are diagnosed as disabled and then cut adrift by the health service to sort yourself out on the whole.

    Add in the current societal distaste for so many "needy" people suddenly appearing, the costs for just existing being really high and the lack of availability of affordable private support and it is a quite a difficult place to exist.

    I would hope we can overcome our differences and pull together to help one another at the very least. This is why I give so much time to answer questions here and do charity work with autists in my city to help them transition from school to the real grown-up world.

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