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LeighB

Hi,

First time on this chat so please go easy on me haha.

I don’t really know where to start.. I work full time which is a massive struggle for me, I feel so burnt out with going in everyday and the last week I have felt so agitated at everything? I am struggling to mask like I do everyday in work which is making it difficult.  Sometimes I feel so alone with everything. Since being diagnosed with autism I feel for everyone else they have forgotten? I know it is not there job to have to understand or be there but part of me was hoping for people to understand a bit more when I’m having my withdrawals or having a bad week.. I struggle with people always saying ‘yeah me too’ I know everyone struggles in their own way but sometimes this is not what you want to hear? 

Does anyone else find communication and socialisation seems to just get harder? I feel like as months go on I seem to be struggling more? I thought it would be the opposite once diagnosed? People say I’m doing great with it but it’s so hard to make the simple conversation with people? I’m leaving all conversations down to my partner and I know I need to work on myself to be better but it’s so difficult recently? even with my own family.  I feel a little bit like after being diagnosed you don’t get much support with autism? I have CBT for my anxiety and I found that useless if I’m honest.  I would like one to one therapy just to talk about my struggles but that expensive to do.  If anyone knows of any one to one therapy through the NHS I would greatly appreciate advice on that.  

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  • LeighB said:
    I have CBT for my anxiety and I found that useless if I’m honest.

    CBT in its "out of the box" form does not typically work for autists and needs to be significantly modified to work for us.

    If you get a chance it may be worth speaking to the company who supplies this service and ask them if they do a version that is formulated for autists. I expect they will have to go read up on it but it may be worth a try.

    LeighB said:
    Does anyone else find communication and socialisation seems to just get harder?

    I found it gets harder as you get older, as your traumas from the lived autistic experience accumulate and it takes effort to maintain any contact socially.

    I even create calendar reminders to keep in touch with old friends as I prefer to be alone most of the time, but there is something to be gained from light social contact on a regular basis.

    LeighB said:
    I feel a little bit like after being diagnosed you don’t get much support with autism?

    Yes, unless you pay the there is precious little available and what you can get on the NHS is typically inadequate at best.

    At the current rate of cutbacks I expect the little there is will dissapear soon.

    I found it best to educate myself (there are loads of books and resources available) but the single biggest benefit was finding a psychotherapist with lots of exprience of helping autists. At £50/hour it isn't cheap but the value for money over the course of 10 sessions was well worth it in my opinion.

Reply
  • LeighB said:
    I have CBT for my anxiety and I found that useless if I’m honest.

    CBT in its "out of the box" form does not typically work for autists and needs to be significantly modified to work for us.

    If you get a chance it may be worth speaking to the company who supplies this service and ask them if they do a version that is formulated for autists. I expect they will have to go read up on it but it may be worth a try.

    LeighB said:
    Does anyone else find communication and socialisation seems to just get harder?

    I found it gets harder as you get older, as your traumas from the lived autistic experience accumulate and it takes effort to maintain any contact socially.

    I even create calendar reminders to keep in touch with old friends as I prefer to be alone most of the time, but there is something to be gained from light social contact on a regular basis.

    LeighB said:
    I feel a little bit like after being diagnosed you don’t get much support with autism?

    Yes, unless you pay the there is precious little available and what you can get on the NHS is typically inadequate at best.

    At the current rate of cutbacks I expect the little there is will dissapear soon.

    I found it best to educate myself (there are loads of books and resources available) but the single biggest benefit was finding a psychotherapist with lots of exprience of helping autists. At £50/hour it isn't cheap but the value for money over the course of 10 sessions was well worth it in my opinion.

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