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Home comforts

LeighB

Hi,

First time on this chat so please go easy on me haha.

I don’t really know where to start.. I work full time which is a massive struggle for me, I feel so burnt out with going in everyday and the last week I have felt so agitated at everything? I am struggling to mask like I do everyday in work which is making it difficult.  Sometimes I feel so alone with everything. Since being diagnosed with autism I feel for everyone else they have forgotten? I know it is not there job to have to understand or be there but part of me was hoping for people to understand a bit more when I’m having my withdrawals or having a bad week.. I struggle with people always saying ‘yeah me too’ I know everyone struggles in their own way but sometimes this is not what you want to hear? 

Does anyone else find communication and socialisation seems to just get harder? I feel like as months go on I seem to be struggling more? I thought it would be the opposite once diagnosed? People say I’m doing great with it but it’s so hard to make the simple conversation with people? I’m leaving all conversations down to my partner and I know I need to work on myself to be better but it’s so difficult recently? even with my own family.  I feel a little bit like after being diagnosed you don’t get much support with autism? I have CBT for my anxiety and I found that useless if I’m honest.  I would like one to one therapy just to talk about my struggles but that expensive to do.  If anyone knows of any one to one therapy through the NHS I would greatly appreciate advice on that.  

Parents

  • Hi and welcome.

    I am afraid I don't have any recommendations, but have shared some of my experience below in case any of it is helpful.

    I too found it hard working full time. I did it for quite a few years until I was able to reduce to 4 days a week, due to the work policy we have. I also now work from home, so rarely go in the office. That has helped, but over the years I have found things get more difficult.

    I also try where possible to use at least some of my non working weekday doing very little. I also use some of my leave to take off an extra day at the end of my working week, especially at busy times. I find going for walks in quiet places helps and also spending time in my garden. I also find craft projects helpful as there are no demands.

    Your comment about people saying 'me too' is one of the things I find difficult. I know everyone gets tired, but they don't really understand how much effort goes into everyday life for us. I was wondering if your managers know you are autistic and have looked at any reasonable adjustments for you. Since having time off work with burnout they have taken more notice, but help has been limited and it does seem that sometimes it is to cover themselves. When I was off I was given advice to join a union, as you can then ask for support at work if needed.

Reply

  • Hi and welcome.

    I am afraid I don't have any recommendations, but have shared some of my experience below in case any of it is helpful.

    I too found it hard working full time. I did it for quite a few years until I was able to reduce to 4 days a week, due to the work policy we have. I also now work from home, so rarely go in the office. That has helped, but over the years I have found things get more difficult.

    I also try where possible to use at least some of my non working weekday doing very little. I also use some of my leave to take off an extra day at the end of my working week, especially at busy times. I find going for walks in quiet places helps and also spending time in my garden. I also find craft projects helpful as there are no demands.

    Your comment about people saying 'me too' is one of the things I find difficult. I know everyone gets tired, but they don't really understand how much effort goes into everyday life for us. I was wondering if your managers know you are autistic and have looked at any reasonable adjustments for you. Since having time off work with burnout they have taken more notice, but help has been limited and it does seem that sometimes it is to cover themselves. When I was off I was given advice to join a union, as you can then ask for support at work if needed.

Children
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