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Prevalence of Autism by region

SR1Autism

Hi all

First of all let me introduce myself. I work as a practitioner in a quite successful (in terms of Ofsted and LSIS Status) North East Autism specific charity as a teacher and development coordinator.

One of my main aims at present is to raising awareness among the general public and health care practitioners in the region. I am currently working with a large local authority to develop training for approx 500 practitioners across the region.

Anyway, I am looking for statistics on the prevalence of ASC and AS throughout the country by region. I thought this would be the easiest of tasks but it has eluded me up to now.  Any guidance (or just general pointing in the general direction) would be greatly appreciated.

Many Thanks

Parents

  • Hi SR1

    I do think WB is making a good point here. Yes the information can be got but the information supplied is most likely not representative of the number of people who have an ASD.

    I am presuming due to the role you describe you are in the main looking at younger people? Or am I wrong and you are looking to provide provision for adults as well?

    Yes there are statistics as you have found but due to the difficulty in getting diagnosis and the sheer and frankly wild variations in levels of service offered across regions these figures are probably conservative at best.

    Many people (adults in particular) are not referred to the services they need in order to be diagnosed and therefore do not even make it onto the statistical data. Even for children some parents decided to go it alone without diagnosis of their child or scrabble about desperately trying to reach the right professional who can help them.

    Obviously this doesn't help you greatly with your research (sorry) and I am pleased you are doing what you can.'coz someone really needs to'..but I do think you need to bear in mind that official figures are not always to be relied upon.

    Despite the AUtism Act there the emphasis is still on the individual or their families to make their voice heard..and but nature of the issues involved this means you don't always make it on to every data base.

    I hope once everyone catches up with the Autism Act more and more people are officially 'registered' and your job will be much easier and the amount of services offered will reflect the need.

    Good luck with your research...the only other option I can think of is you contact local NAS/ASD groups as a comparison against the offical figures and their memberships figures???

    Thanks for looking out for us families and keep up the good work.

Reply

  • Hi SR1

    I do think WB is making a good point here. Yes the information can be got but the information supplied is most likely not representative of the number of people who have an ASD.

    I am presuming due to the role you describe you are in the main looking at younger people? Or am I wrong and you are looking to provide provision for adults as well?

    Yes there are statistics as you have found but due to the difficulty in getting diagnosis and the sheer and frankly wild variations in levels of service offered across regions these figures are probably conservative at best.

    Many people (adults in particular) are not referred to the services they need in order to be diagnosed and therefore do not even make it onto the statistical data. Even for children some parents decided to go it alone without diagnosis of their child or scrabble about desperately trying to reach the right professional who can help them.

    Obviously this doesn't help you greatly with your research (sorry) and I am pleased you are doing what you can.'coz someone really needs to'..but I do think you need to bear in mind that official figures are not always to be relied upon.

    Despite the AUtism Act there the emphasis is still on the individual or their families to make their voice heard..and but nature of the issues involved this means you don't always make it on to every data base.

    I hope once everyone catches up with the Autism Act more and more people are officially 'registered' and your job will be much easier and the amount of services offered will reflect the need.

    Good luck with your research...the only other option I can think of is you contact local NAS/ASD groups as a comparison against the offical figures and their memberships figures???

    Thanks for looking out for us families and keep up the good work.

Children
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