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worried that people wont believe my daughter has ASD

millymolly

My Daughter has been diagnosed with ASD.  She has decided that she doesnt want anyone to know except a family that have been close to us for some years.  im not sure that this is the right thing to do although i havent told her this.  She feels she needs at least one person to understand.  My daughter is very very well behaved and in one of the top sets at school so i worry that they will not believe that she has this problem.  it totally makes sense to me, and as i too suffer (and have told noone) i think having the diagnosis can only help her at this time.  Has anyone else had this?  the reaction of others not being accepting or understanding?  really worried for my daughter in case this back fires on her and she ends up hurt.

  • you know that letter idea could be a really good idea, i am one of those people that has to make lists and notes, even if i dont read them again just writing them down makes it real.  I will suggest the letter thing to her, see if that can maybe help her get things straight in her head thanks you both for your comments

  • Is it that she doesn't want to tell people or that she only wants to tell people that she knows will really understand. i am certainly of the second persausion. There are only a handful of people that I choose to share whats really in my head. They are an odd mix of people too some that I see frequently and others that I only see once a year. There is something about those folks who strike a chord.

    Sure theres a whole raft of other folks that get a cut down version based on what they "appear" capable of understanding.

    I think there is quite a difference between being in denial and choosing who you share with. Some of that I am sure is a need to be certain how you feel before you feel confident sharing it. In truth though, I think it is in talking to people that you really discover how you feel but that is a awkward lesson to learn (and still painful even now).

    Could she write a letter to "no one in particular" saying what she would like to tell the people she trusts. Having expressed things once she may feel happier sharing what she has already told someone else.

    Sorry we can't be more help.

  • She is probably worried her peers will find out and treat her differently.  Could you tell he that if you tell her school they won't tell the children, it will just be so that they know in case she needs help.  How old is your daughter?

    My eldest child doesn't even know her own diagnosis, that was how she wanted it and she is in incredible denial about the cause of her difficulties.  I am hoping one day she will change her mind and be more accepting.