The Tinsley House Clinic

Does anyone have any information about this clinic as it claims to cure alsorts. 

  • Sorry - off original topic - Do you think co-morbidity of some of the things you mention - OCD, depression etc are actually a nonNT brain's way of wiring around what it knows? If that makes sense? In that, the brain in nonNT wishes to work in such a way that society says is incorrect and so in attempting to re-route the wiring the brain must induce OCD for example, as a byproduct, or indeed as a necessary to produce the desired result? 

    The pasicity of the brain is fascinating - My 39 year old otherhalf has made such enourmous differences to his life, by changing his thought processes and so affecting his AS to his advantage - nothing is ever set in stone, although I see the ease with which I am able to support my 5 year old into new ways of thinking and so coping with his world - is so much more obvious - OH has felt great discomfort in applying new rules and so destroying old ones - 5 yr old however - has no problem in learning how to "read" people - its slow and steady, but steady is better than stagnant! And so totally different to my other children.. stuff that flows to him is difficult to them, and vice versa.   So I do agree that new things can be learned, implemented and further internalised into habit, and I am sure certain herbs and pills and potions can support that but I would be very wary of any clinic that is offering a "cure". 

  • True, but the vast majority of people with Aspergers also have co-morbidities, depression being another one. The co-morbidities may well have been triggered by the environmental factors you mention, and undoubtably would get better if the triggers were removed, but often take on a life of their own.

    I know people with pure ASC as well, and I know that their anxiety is certainly context specific, but they are in a privileged minority within the AS community. Most people I know with AS have a co-morbidity, and this is backed up by the research.

    I sit on the side of the fence that argues that in most cases OCD in AS is different to OCD without AS, and can be a symptom of the wider repetitive behaviour and negative thinking styles that often occur with AS. By all means not all people with AS will have this problem, but this is because AS is a multifarious condition with many different causes. Not all people with AS have motor issues either, but this is very common, too, and is usually considered a part of the AS in the people who have this problem.

  • OCD is a different diagnosis to ASC.  Although there is contention amongst experts (which I may have posted on the forum previously about) as to whether OCD behaviours in an autistic person are part of their autism or a co-morbid condition.

    Intrusive thoughts are not to my knowledge common to a pure ASC diagnosis.  Anxiety has a trigger and I refer to people with just an ASC diagnosis not additional conditions (whether diagnosed or not).

  • Anxiety can be caused by all the factors that Intense World mentions, but anxiety can also be endogenous and can occur even in an environment that is supposed to be relaxing. For example, a high number of people with AS also have co-occuring OCD, such as myself. I can sometimes have extremely anxiety provoking intrusive thoughts in environments which should not be stressful. It is often impossible to predict when I will get an OCD attack, but certainly environmental factors such as noise, lack of a good night's sleep, and being in unfamiliar environments can make any anxiety even worse.

    I guess we have arrived back at the medical versus social model debate. I think that the social and the medical interact closely and should not be seen in isolation. Even with an ideal environment (no sensory disturbances etc), some people with AS will still experience anxiety. Good therapy could help a lot, although many people with AS will never be anxiety free no matter what help is provided, but sadly popping pills is indeed the usual path taken.

  • I appreciate the relevance of holistic or natural remedies. However what also particularly worried me about this site was its assertion that if your child showed dyslexia symptoms, they probably had most of the other "symptoms" as well.

    So rather than being sold one bottle of pills appropriate to the part of the brain they deem relevant to sutism, they'd also have you buying four of five other bottles of pills for the other symptoms they'd assure you they could spot, that no-one else had told you about.

    One way of selling you the whole gamut of their pill products. But is this misinformation about other symptoms beneficial, and is there an issue with excessive intake of these pills?

    I wish there was a way to regulate sites like this.

  • I had no prior knowledge of this clinic.  What I am open-minded to, is holistic treatments (although I appreciate there may well be a lot of "snake oil" out there and these remedies aren't cheap).

    It does take a different view than that of mainstream scientists, because they never think outside the box.

    Autism is likely to be epigenetic and also their ethos recognises the plasticity of the brain, especially in childhood.

    So long as people aren't going broke or getting led up the garden path in paying for these treatments, I would defend peoples' rights to choose such methods, as at the very worst they recommend supplements and a healthy diet which are generally beneficial even if they don't "cure" a person's condition.

    Not only that, the medical profession is so quick to medicate people for things that should not be medicated.

    My current bugbear is the failure of mainstream professionals to understand the anxiety that often accompanies ASC.

    If you don't encounter adverse situations or environments, you are not anxious.  Anxiety is triggered by things like:

    • fear of going into social situations
    • having to deal with a problem you feel ill-equipped to deal with
    • sensory difficulties
    • lack of understanding from others
    • social pressures and associated confusion

    We are not therefore walking around like deranged, neurotic idiots the whole time, and yet doctors are quick to say "you have anxiety, here are some pills".  If you take away the stressful situations, the anxiety is gone.  They treat us like NTs with anxiety and fail to understand how it is.  They assume that if we visit their office with signs of anxiety (much of which will be from just sitting there in that situation) that we are like that the whole time.

  • Interesting question. How do you react to a clinic which states in its first lines that "The learning and behavioural disorders as we know them DO NOT exist". BUT....

    "They do exist as they are not conditions per se but symptoms and symptoms that will always be present in patterns of comorbidity (together)".

    Leaving aside the herbal remedies on offer.........that will reach different parts of the brain they confidently assure us will treat symptoms.

    It boils down to what I've said before about another service, if they cannot explain autism, how can they confidently assure people they can treat it. Given they deny autism exists, they are not likely to develop much understanding.

    I hadn't heard of it before, and would be quite glad if we didn't have to hear of such things. But there's little can be done to stop this sort of thing.