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HELP!

New Diagnosis to Autism

To hello everyone,

    Is there any tips and coping ways can anyone give me? My daughter is 2 years old. She's my one and only daughter. I have no other kids. I'm having a hard time accepting, I'm in pain and crying all time about her ASD. I know it sound pathetic but I feel like crap, I can't sleep at night, crying is mostly what I do other than chores, work, full-time school, take care of my baby and my husband. My family is not really much of a help. I talked to my mom and all she said is "you should've been the one that has an ASD!...what a waste... your daughter is so beautiful". My siblings have their own issues. I have no close friends that are near by. I don't know what to do please help.

Parents

  • I would agree with Longman that if you don't have a diagnosis (unless you have been told it's definitely forthcoming) you shouldn't be worrying and stressing to this extent.

    As you appear to be in the US, I would also want to ensure that they are not rushing to diagnosis unless it's categorically present.  If you Google "America overdiagnoses autism" you will get a plethora of information about how autism is being diagnosed suspiciously frequently.  I believe the estimates are 1 in 50 to 1 in 88 in America, in the UK it's estimated at 1 in 100.  So either there is an epigenetic difference in America due to e.g. higher use of toxins in the environment or something else is going on.

    We all know that the US is litigious, so perhaps there is a tendency to hone in on autism for some reason (either as a parallel or directly connected to litigiousness) for instance.

    If your daughter truly is autistic, 2 years old is so young and even if she was non-verbal now that absolutely doesn't mean she would stay non-verbal and early intervention can work wonders.  Google "Carly Fleischmann" a Canadian girl who was labelled as a severe autistic and see where she is now.

    Ignore mean comments from your mother.  Google for what autism support groups or charities there are in your area as you may make a new circle of friends who understand what you are going through.

    BTW, both Longman and myself are on the autistic spectrum - would you have guessed?

Reply

  • I would agree with Longman that if you don't have a diagnosis (unless you have been told it's definitely forthcoming) you shouldn't be worrying and stressing to this extent.

    As you appear to be in the US, I would also want to ensure that they are not rushing to diagnosis unless it's categorically present.  If you Google "America overdiagnoses autism" you will get a plethora of information about how autism is being diagnosed suspiciously frequently.  I believe the estimates are 1 in 50 to 1 in 88 in America, in the UK it's estimated at 1 in 100.  So either there is an epigenetic difference in America due to e.g. higher use of toxins in the environment or something else is going on.

    We all know that the US is litigious, so perhaps there is a tendency to hone in on autism for some reason (either as a parallel or directly connected to litigiousness) for instance.

    If your daughter truly is autistic, 2 years old is so young and even if she was non-verbal now that absolutely doesn't mean she would stay non-verbal and early intervention can work wonders.  Google "Carly Fleischmann" a Canadian girl who was labelled as a severe autistic and see where she is now.

    Ignore mean comments from your mother.  Google for what autism support groups or charities there are in your area as you may make a new circle of friends who understand what you are going through.

    BTW, both Longman and myself are on the autistic spectrum - would you have guessed?

Children
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