Has Any Adult on the Spectrum Recieved Any Help from NAS

I would have thought you would get help anyway if you are moving into a new house and dealing with many documents you've never seen before like bills, rent that sort of thing i'm guessing. So really, I just want the easy life, not one where no one tells you anything and expect you to know everything there is to know about everyday life as a full time employee in your own house with your own rules.

What are the things most people need help with,,

Things like advocacy, legal advice, housing are not provided by NAS, if you ask for any on these things they just send you documents and links to other places that do, yet NAS are the ones getting the huge majority of the funding for people with autism spectrum conditions.

Confused as to why you think the only adults that would need help are in education?

Would have thought you would only need help if you were in education, otherwise I can't imagine you need help unless you're moving into a job or have one that requires excellent communication skills or deals with customers every day. I don't picture myself getting a job after I graduate (I hope i graduate) in the current job market but beside the point I don't want to go into a job requiring that much input from all the staff, I know I wouldn't cope well in a conference, meeting or group so that could be something that the NAS could help with. NAS should provide a service that lines up all suitable jobs that we could apply for, as you can imagine, most jobs advertised online are aimed at the kind of people who are well educated and can communicate well with others with a few jobs that might appeal to immigrants who take the jobs we should be getting.

nmr1991 said:

They can't do much help for adults apart from the education side of it

Can't or won't? Some of us have asked for help, which we really need. But NAS won't help in the slightest.

I was talking to a friend about this some time ago. (I'd emailed NAS for help with education matters and was given no support) and he said that in his experience, they don't help adults.

Does the NAS fund any research?

Then why do the NHS send us to NAS for help ?

Is that all the help you get, some information of other organisations sent to your email and a forum ?

You help a starving person by giving them food not information, NAS do not give food because food costs money.

If someone emails them or uses the phone line they put that statistic down as helping one person so at the end of the year they can say things like This year we helped  x amount of adults with autism...the fact is they don't help anyone at all, they just give information out.

Those reading the statistic probably assume these people were helped with some kind of careworker, accomodation, finding a job, legal issues about local authorities, etc...etc..

Nas is nothing but a sham if you ask me.

I would have thought in helping adults, they would be studying the brain in various tests just as they are experimenting with chemicals to synthesize a cure for diseases. They can't do much help for adults apart from the education side of it but I wouldn't consider myself adult until i've finished university and joined the world of work, but would consider the latter to constitute myself as an adult.

Apart from education, and I suppose work is an education in a way, keeping your position in a job might be the only factor to take into consideration and when I get my first job, I don't want to get fired on my first day for not using what NT's would call common sense or taking the logical way around a problem. It is somewhat holding me back on my degree, the way i'm thinking, the way I perceive a problem... it's easy to understand what to do, I think of it theoretically but I can't put it into practice.

at this time i find the web site and this forum facility all the help i need. i would like to think that if i needed more supports in the future then NAS might be able to offer them?

respect

rob

I was going to ask questions about help and support for adults after sorting out some criteria to help quantify the results.

The only time I rang the helpline was for advice for my youngest child, she hadn't yet got a diagnosis and because of that they refused to help.

I emailed them a query about my own situation once, it took them many months to reply and when they did it was just containing links to information I already had.  They didn't physically offer to help, by way of either contacting the NHS department I was having trouble with or writing a letter on my behalf or supporting me in any way.

I recently became a member.  It was mostly to get the autism alert card.

I have had no real support, I dop not think there is any real suppport for borderline asperger syndrome.

From my local NAS branch, yes. But when I've emailed NAS, I've not received much help.

When I joined NAS they sent me a big envelope full of literature, but amongst this was the most bizarre article, purporting to explain Asperger's, where the author went on about someone supposedly with aspergers but living in a care home and drinking water out of the wc. The author seemed to be limited to a small amount of contact with people in a care home (I've seen conference papers and help articles by these sort of people who've seen one aspie and think that's enough to pose as an authority on it).

I contacted NAS in some alarm as to what on earth this was doing in help information for the public, and they responded saying they were puzzled and hadn't known it was in the pack.

I'm afraid that's been my experience ever since. They do try to help but there are these little glitches that make not the slightest sense, as if they are not monitoring what they put out. I've aired some concerns on other threads about their on line guides to aspects of autism. They just seem to need to do quality and consistency checks.