Needing some support

Hi my names sonia and my sons name is Ben.

I have recently obtained a diagnosis for Ben of high functioning ASD through a charity. I took this step because I had received a diagnosis from the NHS, the school said they disagreed so another short assessment of 45 minutes was done in school and the specialist revoked the diagnosis.

My main problem is that Ben behaves completely differently in school to at home. At school he follows the rules, sometimes shouts out and is fidgetty but behaves and shows no aggression. This is completely different to home. 

My ex supported me in getting help for ben until we seperated and he got a new girlfriend, now he is saying I sold him to the idea and I am just determined to get Ben the diagnosis I want.

Ben had the ADIR test which has come back conclusively as ASD/Aspergers. He fits so many of the obvious traits except when at school.

I don't want to have to fight school I want them to work with me to help Ben.

I'm just so tired of it all. When Ben was 4 the school came to me with concerns. As the years have gone on its almost like he has learnt to behave in school. Up until just a year ago he was chewing his shirts everyday, now he has stopped. In year 1 he was turning himself away from the class, chewing, licking white boards, eating chalk, climbing under tables etc. He doesn't do any of that now, he's just a fidget and shouts out sometimes.

He is strong and agressive at home, he has no toys or interest in them. He only has minecraft on the internet. he has only ever been invited to tea or a party twice in all his school years. he has two really good friends and is friendly to others in school but once home he just wants to be on his own in his room. He has in the last month, broken remotes, thrown an extension lead at me, put two holes in his door and numerous other outbursts of aggressive behaviour.

I don't know what to do anymore and I don't know if what I am doing is right. I am doubting myself all the time, maybe I am the one in the wrong and they are all right :(

Parents
  • Hi Sonia,

     It was the chewing shirts that really got my attention (not just shirts, anything chewable!) but I think i may be in a similar situation as you. My son -I'll call him Jo - appears to 'hold it all together' in school yet it all comes out when he gets home. Jo is now starting his exam years in High School and whilst the home demolition and other aggressive behaviour has lessened it is still very clear that school is an issue. He is informally diagnosed with Aspergers, I am formally diagnosed and can confirm that I have 'learnt to behave' in certain situations. This makes it very hard to get support for both myself and for Jo. I also doubt myself - it is hard to have faith without any back up - my ex does not want to know either. Your post struck a chord with me though and somehow made me realise I am not so wrong after all - we have every right to stand up for ourselves and our children Smile

Reply
  • Hi Sonia,

     It was the chewing shirts that really got my attention (not just shirts, anything chewable!) but I think i may be in a similar situation as you. My son -I'll call him Jo - appears to 'hold it all together' in school yet it all comes out when he gets home. Jo is now starting his exam years in High School and whilst the home demolition and other aggressive behaviour has lessened it is still very clear that school is an issue. He is informally diagnosed with Aspergers, I am formally diagnosed and can confirm that I have 'learnt to behave' in certain situations. This makes it very hard to get support for both myself and for Jo. I also doubt myself - it is hard to have faith without any back up - my ex does not want to know either. Your post struck a chord with me though and somehow made me realise I am not so wrong after all - we have every right to stand up for ourselves and our children Smile

Children
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