• Replies 2 replies
  • Subscribers 31 subscribers
  • Views 526 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Support whilst waiting for a diagnosis support/guidance

Jazzy

Hi, I’m a guardian to my sister which is 14 and we believe she’s got autism . School have now back my thoughts and feelings up and put things In place to help with my thoughts and queries we’ve been on the waiting list for CAMHs now for quite some time, we’ve had 2 meetings now one to meet and introduce my sister and the second was a neurological assessment to be put through tho the neurological team for a decision wether they think the same. I’m really messaging today for some support regarding how we cope in the mean time, we struggling as a family with boundaries, constant fluctuations in behaviour, not realising when somethings wrong or realising when things have gotten too far on her side of things multiple arguments most days it’s just hard to cope with. For a family it’s all affecting our mental health and we’re clueless as of where to start. Anything will be much appreciated 

Parents
  • Jazzy said:
    I’m really messaging today for some support regarding how we cope in the mean time

    There is a lot to get your head around and Chloe has linked to some great resources.

    If you want to dig a bit deeper then there are quite a few books that can help:

    The Loving Push - How Parents and Professionals Can Help Spectrum Kids Become Successful Adults - Debra Moore, PhD, Temple Grandin, PhD (2016)
    eISBN: 9781941765296

    Asperger's Answer Book - The Top 275 Questions Parents Ask - Susan Ashley PhD (2006)
    ISBN 1402219776

    The following are more for your sister:


    Social Skills for Teenagers and Adults with Asperger Syndrome - A Practical Guide to Day-to-day Life - Nancy J., Ph.D. Patrick (2008)
    ISBN pdf eBook 9781846428449

    Social Skills Groups for Children And Adolescents With Asperger's Syndrome - A Step-by-step Program - Kim Kiker Painter (2008)
    ISBN pdf eBook 1846425190

    My recommendation is start with the links from Chloe then dig deeper with the books.

    If you have more specific situations or questions then you can probably get these answered well here, but for the sheer volume of information to process, the books are how I would do it.

Reply
  • Jazzy said:
    I’m really messaging today for some support regarding how we cope in the mean time

    There is a lot to get your head around and Chloe has linked to some great resources.

    If you want to dig a bit deeper then there are quite a few books that can help:

    The Loving Push - How Parents and Professionals Can Help Spectrum Kids Become Successful Adults - Debra Moore, PhD, Temple Grandin, PhD (2016)
    eISBN: 9781941765296

    Asperger's Answer Book - The Top 275 Questions Parents Ask - Susan Ashley PhD (2006)
    ISBN 1402219776

    The following are more for your sister:


    Social Skills for Teenagers and Adults with Asperger Syndrome - A Practical Guide to Day-to-day Life - Nancy J., Ph.D. Patrick (2008)
    ISBN pdf eBook 9781846428449

    Social Skills Groups for Children And Adolescents With Asperger's Syndrome - A Step-by-step Program - Kim Kiker Painter (2008)
    ISBN pdf eBook 1846425190

    My recommendation is start with the links from Chloe then dig deeper with the books.

    If you have more specific situations or questions then you can probably get these answered well here, but for the sheer volume of information to process, the books are how I would do it.

Children
No Data