Terminology for diagnosis

Hello there

I am a parent of an autistic young person, daughter of an autistic father, sister of two autistic brothers and I work for the NHS as a music therapist, 95% of my clients are autistic. When I see the acronym ASD and hear the phrase autistic spectrum disorder used to diagnose and describe I cannot help feeling that we have moved far beyond referring to it as a disorder and that it could be a derogatory or offensive term/label. I certainly see many strengths in the people I work with and although being autistic can be challenging in the way society is currently set up, I wonder if the word disorder is any where near appropriate. I want to raise this at work to see if we can find better ways of describing autism and naming a diagnosis, but feel that I need to gather some opinions from the autistic community to see how people feel about ASD as a label or diagnosis so that I have some evidence to support my argument. 

In other areas I work in it is referred to as ASC or autistic spectrum condition. Or is simply Autism a more appropriate term to use?

I hope I have not offended anyone in raising this. I am very interested in peoples thoughts around this. 

Many thanks

Parents Reply Children
  • Thank you. In saying it out loud I certainly feel that disorder does not feel like a good term to use. I work alongside the team that does assessments for children so it would be a big shift for them, but the standard wording is ASD at the moment and I think that needs to change. I also do not think it helps parents who discover their children are autistic in coming to terms with it if they do not know much about autism at the point of assessment. Thank you for your reply.