I wouldlike your opinions

My son is 9, I have known there is something different with ben for a long while. It used to be anger and lashing out but now he is 9 things are different. we were given a diagnosis of autism/aspergers. This has since been revoked because he displays none of the signs at school.

The ongoing unusual behaviours are:

He has no toys, does not want any toys even for christmas. This is after 5 years ofobsessive collection of lego (We have about £3000 worth of it) He asked for and was bought a number of lego sets for christmas.He has never opened them. He wants me to sell it all and says that he woke upon christmas morning and thought I don't like lego anymore.

He knows how to be sociable and is liked in class at school. Outside of school he is never invited anywhere, has one friend, a girl from nursery who is still in his class in year 5 who he sees out of school once every 2months or so.

He likes to sit in his room, his latest obsession is minecraft. if I force him to go out somewhere he will have "meltdowns" as I call them and then pretty much I will suffer most of the day.

He is amazing at maths, and is in an able maths class at school. But he cant put his working out down, its in his head

He is below average in english and handwriting

He will only read fact books to the point that he refused to read at school if he couldnt read fact books

He has a strong sense of injustice and often it is this that will set of a meltdown. 

His meltdowns generally mean, shouting abuse at me, kicking objects around the house, banging, kicking the car etc. This is an improvement because it used to be kicking me.

If we go out he will get edgy after about 2 hours asking when we are going home. When we go on holiday he is the same but wherever we are staying becomes his "new home" so he will want to go back there after a while. 

he prefers his own company and the computer

In school the only outward sign he has shown in the last year was chewing of his clothes,but at the moment that has stopped too. He comes out of school like a whirlwind. If I take him straight home and he can go to his room he is ok,but if I try and take him anywhere after school he will lose it.

I don't know where to turn anymore. He has had his diagnosis taken away, I don't want to keep taking him places and trying new doctors, because maybe they are right. Maybe he doesn't have any kind of behavioural issues. My concern is that it is his 11+ year, he is going to fly in maths because I don't think they need to show their working out but he is going to definitley struggle in english. and in the future if he cant show his workings what will happen to his exams. Am I just over worrying, should I pursue it or just leave him be to grow up however that may be. It is so hard being a mum!

Parents
  • sonia said:
    They did watch himin school and did the ados test (I think thats right) the first time they said he scored high the second timewhen they did the test at school he scored lower

    The ADOS-2 is only 77% reliable in high-functioning children.  The DISCO would be more in-depth and any such clinical tool is only intended to be part of the assessment process not to make the actual clinical decision on.

    Answering questions or completing tasks can change with autism depending on your stress levels and environment.

    As above, watching at school means virtually nothing, particularly when the child is the passive type.  You wouldn't believe the difference between my 8yo behaviour from school and home.

Reply
  • sonia said:
    They did watch himin school and did the ados test (I think thats right) the first time they said he scored high the second timewhen they did the test at school he scored lower

    The ADOS-2 is only 77% reliable in high-functioning children.  The DISCO would be more in-depth and any such clinical tool is only intended to be part of the assessment process not to make the actual clinical decision on.

    Answering questions or completing tasks can change with autism depending on your stress levels and environment.

    As above, watching at school means virtually nothing, particularly when the child is the passive type.  You wouldn't believe the difference between my 8yo behaviour from school and home.

Children
No Data