Thanks for this - Ill try to find a way of passing this on to my social worker here in the U.K. as my family in Ireland are fairly insistent on the fact that I need a live in carer post diagnosis in a traditional Irish Catholic cultural context and are prepared to do anything to ensure that this happens, where they also firmly believe and maintain that ultra strict discipline as given by a live-in carer (ideally a Catholic Priest, Friar or Religious Sister/Nun) is the only way to and is essential in managing my condition - one family member who is an ex-Millitary officer, has developed a ten-point-plan on how my condition needs to be managed and is passing it on to everyone as high up as possible in the U.K. and to everyone he can think of (anyone that will listen) to ensure that his plan in fully implemented in regard to my condition and that his demands are met in relation to my condition, especially as my diagnosis was carried out online via Zoom and in the years before my redundancy in Sept 2019, my family had wanted me to move back to Ireland when they suspected that I might have this condition, acting under traditional Irish Catholic social teachings
Thank you - in regards to employment many jobs that are considered appropriate for our condition even with appropriate training do not match our previous employment experience and are not considered relevant, such as 30 years in supermarket retailing and in my case, working in public areas cleaning and kitchen porter in a hotel just over a year now, which is not really a good fit, but the choice to leave, even if I find a more suitable job without going back on benefits, is not really up to me, from other people, who believe that I need ultra strict military style discipline in order to manage my condition and they want me to have a live in carer and travel chaperone for long distance travel over 20 miles
