Advice for New Couple learning About being a Neurodiverse couple

Hi everyone,

I am new here and a neurotypical, but my boyfriend has recently been diagnosed with ASD and I wanted to reach out here on behalf of both of us because we are feeling challenged by an aspect of this new path we have found ourselves on. I think in general we are very good at accepting each other's needs and understanding where they come from. I love him and his brain so much and the way it works. We are both in therapy, me for emotional support and him to help him understand himself better. We are contemplating what a future together looks like, which is something we both want, however, unsure if we are able to meet the needs of both of us. One of his needs is that he needs a lot of social isolation (i.e. completely alone in his apartment - we dont live together at the moment) if I am even in a different room, he still senses things are different, and doesn't feel that recharge or 'filling up his cup' in the same way. Does anyone have experience in this? Are there any strategies you would recommend besides me completely vacating the premises for most of our time together?

Really appreciate this forum to learn, understand and grow.

Katie

  • I am definitely not an expert on such matters. As an autistic female diagnosed in my 40s, it was a complete revelation to me when I discovered that it was common for many people with autism to need a lot of social isolation. Seems I'm in the minority because I consider myself to be more like you, than your partner. The prospect of spending the majority of my time isolating myself away from a significant other would likely add to my misery, rather than reduce it. However, that's not to say that I wouldn't welcome some time to myself once in a while.

    Are you based in the UK? Apologies if it is stating the obvious, but as the National Autistic Society is a UK charity, there are considerably fewer members online during the wee hours of the morning. Therefore, it may be several hours before some of the more knowledgeable members can offer you the kind of advice you're looking for.

    One thing I will add, based on what you have said, is that you may want to prepare yourself for the possibility of a future that doesn't involve the two of you living under the same roof, but in separate homes. 

  • Hi. Slight smile

    I'm famously clueless, unfortunately. Thankfully, there's a few links here:

    https://www.autism.org.uk/advice-and-guidance/professional-practice/successful-relationships

    https://www.autism.org.uk/advice-and-guidance/professional-practice/autism-relationships

    www.autism.org.uk/.../maintaining-relationships

    Otherwise, this forum is much busier during the daytime, so perhaps you'll get a better response then. Best of luck to you both. Slight smile