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How about an specialist Autistic Regulatory body ?

openheart

How about an Autistic Regulator body ?

The annoying issue for me, is the total disparity in the system,, post code lottery and chance.

In surrey they set up private autism schools, in the inner cities you end up with a mental health problem due to lack of support, then you get support.(paradox). The UK is still such a country of economical and social divide. Running of crisis management because there is no pre-planning or standard guidelines being instrumented across the country.

It would be good to have list of what assistance you should be getting if you have autism, as it seems to me that no one knows, not even the professionals involved in the condition.

How about an Autistic Regulator body as a core solution ? at least this way it will advocate and give or enforce statutory rights for people abused by the system by lack of care, as it currently stands in many areas across the whole country.

I feel the NAS are attempting in way to cover this role,, but maybe in London they are the voice of autism, but on the wider isolated spectrum of the country they are not so, and this is were the gap of services are.

Is the current regulatory body the NHS ?

 

Parents

  • Aspergers Condition may not even seen as existing condition in professional reality has it is classified under the heading of Autism, until social communication disorder is put into the professional diagnostic manual, it is a social manipulation of the word autism.

    Aspergers will be seen as a type two autism diabetes(so too speak) condition,, and treated without full attention of the professionals until it reaches type 1 autism diabetes, or in the real case of Aspergers, forms a secondary mental health problem due to lack of support, these secondary conditions will fit nicely into there existing mental health system. So this creates meantime a care gap with Aspergers, until you collapse or become critically ill. Which is half the talk on this forum, lack of support. I would add it adds to the political economical social manipulation just now that the government and agencies are cutting right down on the diagnoses where they can so less people can claim  support due to austerity. Aspergers is paying the price for this in the autism sector, but at the end of the day, waste of time policy, because, it will only get worse and use up more resources later and cost society more. Typical Tory short-term non-social thinking. But on saying that, that is were the ghettos and low income zones come in handy, to hide us all away in these modern open air mental health institutions called ghettos, were the GPs and medical staff are low standard third world influxs. God save the Country.

    I am now being to see how this works... I have aspergers, but I do not have recognised Governmental full Autism, the care professionals,,(docs) and only interested in me, because I have secondary mental health issues due to lack of care. Anxiety, O.C.D etc. What these governmental scum, don't realise is,, Aspies if they get the bone between there teeth will not let go !!!!  Government,, watch out the aspies are about ! coming to office near you !

    This situation is cruel on people with aspergers, or half autisms. Sorry this is the only way I can explain it . Sorry for anger in words,, no offence.

Reply

  • Aspergers Condition may not even seen as existing condition in professional reality has it is classified under the heading of Autism, until social communication disorder is put into the professional diagnostic manual, it is a social manipulation of the word autism.

    Aspergers will be seen as a type two autism diabetes(so too speak) condition,, and treated without full attention of the professionals until it reaches type 1 autism diabetes, or in the real case of Aspergers, forms a secondary mental health problem due to lack of support, these secondary conditions will fit nicely into there existing mental health system. So this creates meantime a care gap with Aspergers, until you collapse or become critically ill. Which is half the talk on this forum, lack of support. I would add it adds to the political economical social manipulation just now that the government and agencies are cutting right down on the diagnoses where they can so less people can claim  support due to austerity. Aspergers is paying the price for this in the autism sector, but at the end of the day, waste of time policy, because, it will only get worse and use up more resources later and cost society more. Typical Tory short-term non-social thinking. But on saying that, that is were the ghettos and low income zones come in handy, to hide us all away in these modern open air mental health institutions called ghettos, were the GPs and medical staff are low standard third world influxs. God save the Country.

    I am now being to see how this works... I have aspergers, but I do not have recognised Governmental full Autism, the care professionals,,(docs) and only interested in me, because I have secondary mental health issues due to lack of care. Anxiety, O.C.D etc. What these governmental scum, don't realise is,, Aspies if they get the bone between there teeth will not let go !!!!  Government,, watch out the aspies are about ! coming to office near you !

    This situation is cruel on people with aspergers, or half autisms. Sorry this is the only way I can explain it . Sorry for anger in words,, no offence.

Children
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