How about an specialist Autistic Regulatory body ?

How about an Autistic Regulator body ?

The annoying issue for me, is the total disparity in the system,, post code lottery and chance.

In surrey they set up private autism schools, in the inner cities you end up with a mental health problem due to lack of support, then you get support.(paradox). The UK is still such a country of economical and social divide. Running of crisis management because there is no pre-planning or standard guidelines being instrumented across the country.

It would be good to have list of what assistance you should be getting if you have autism, as it seems to me that no one knows, not even the professionals involved in the condition.

How about an Autistic Regulator body as a core solution ? at least this way it will advocate and give or enforce statutory rights for people abused by the system by lack of care, as it currently stands in many areas across the whole country.

I feel the NAS are attempting in way to cover this role,, but maybe in London they are the voice of autism, but on the wider isolated spectrum of the country they are not so, and this is were the gap of services are.

Is the current regulatory body the NHS ?

 

Parents
  • phew ! Longman, that does not make good reading but the information you give is eye opening.

    Basically the austistic community is caught between a rock and a false government. Frown

    Who is our champion ? NAS ? Time ? the person who proposed the ACT in the first place ?

    Or as I have said previously,, post code lottery, there is healthcare and there is healthcare, same with Autism if you are living in a high income area, the services will be better. The same way..., (this cracks me up),, take a train, flower baskets hanging in station and as you near the inner cities,, no flower baskets. So basically if you live in a *** area, you get a *** autism service, period ! That is the only way I can look at it.

    So who is the point of contact, the one responsible for this shambles ? As you say, speaking to local government or central government, it is just pass the parcel back and forth.

     

Reply
  • phew ! Longman, that does not make good reading but the information you give is eye opening.

    Basically the austistic community is caught between a rock and a false government. Frown

    Who is our champion ? NAS ? Time ? the person who proposed the ACT in the first place ?

    Or as I have said previously,, post code lottery, there is healthcare and there is healthcare, same with Autism if you are living in a high income area, the services will be better. The same way..., (this cracks me up),, take a train, flower baskets hanging in station and as you near the inner cities,, no flower baskets. So basically if you live in a *** area, you get a *** autism service, period ! That is the only way I can look at it.

    So who is the point of contact, the one responsible for this shambles ? As you say, speaking to local government or central government, it is just pass the parcel back and forth.

     

Children
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