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How about an specialist Autistic Regulatory body ?

openheart

How about an Autistic Regulator body ?

The annoying issue for me, is the total disparity in the system,, post code lottery and chance.

In surrey they set up private autism schools, in the inner cities you end up with a mental health problem due to lack of support, then you get support.(paradox). The UK is still such a country of economical and social divide. Running of crisis management because there is no pre-planning or standard guidelines being instrumented across the country.

It would be good to have list of what assistance you should be getting if you have autism, as it seems to me that no one knows, not even the professionals involved in the condition.

How about an Autistic Regulator body as a core solution ? at least this way it will advocate and give or enforce statutory rights for people abused by the system by lack of care, as it currently stands in many areas across the whole country.

I feel the NAS are attempting in way to cover this role,, but maybe in London they are the voice of autism, but on the wider isolated spectrum of the country they are not so, and this is were the gap of services are.

Is the current regulatory body the NHS ?

 

Parents

  • The theory is that the Autism Act will enforce on councils that they appoint a commissioner to requisition services for people on the spectrum, BOTH children and adults, and this includes them having an autism partnership board which people on the spectrum can attend, to ensure their needs are met.

    The reality for most local authorities goes against the Act. What the Act was trying to rectify was that autism is hardly supported at all and often falls between learning disabled and mental health.

    The idea of an autism partnership board is that there is a body that addresses autism issues. Sadly the act was ambiguous in this objective, as it allowed authorities to use an existing learning disability partnership board as a framework for addressing autism.

    In reality however what most councils have done is include autism ONLY if people on the spectrum have a learning disability. They aren't making any provision for those not classed as having a learning disability. This means you can only attend or observe the board's activities if you have a learning disability. So no progress.

    Some authorities are claiming to have created a separate autism board/commissioner, but patently haven't, and it is very hard to pin anyone down about what provisions have been made.

    Typically for national government they have passed responsibility to local government while severely curtailing local government funds. So its a joke to suppose national government will "lift a finger" (that is make the slightest effort) on behalf of autism. They've placed the responsibility on local government.

    Hence the current review of how local authorities have progressed with this, and the opportunity for you to say they haven't.  You need to try and find out if your local authority has an independent autism partnership board and an independent commissioner, whether it has any data on who has autism in their authority area, whether they've provided training for staff, and whether they've taken steps to educate the police, health workers and educators.

    It will be hard to find this out. Most local authorities will lie about it. But then National Government knows this. It is harder to pin down lots of local authorities than get one national government (or even one ridiculously highly paid Government Minister) to answer a straight question accurately.

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  • The theory is that the Autism Act will enforce on councils that they appoint a commissioner to requisition services for people on the spectrum, BOTH children and adults, and this includes them having an autism partnership board which people on the spectrum can attend, to ensure their needs are met.

    The reality for most local authorities goes against the Act. What the Act was trying to rectify was that autism is hardly supported at all and often falls between learning disabled and mental health.

    The idea of an autism partnership board is that there is a body that addresses autism issues. Sadly the act was ambiguous in this objective, as it allowed authorities to use an existing learning disability partnership board as a framework for addressing autism.

    In reality however what most councils have done is include autism ONLY if people on the spectrum have a learning disability. They aren't making any provision for those not classed as having a learning disability. This means you can only attend or observe the board's activities if you have a learning disability. So no progress.

    Some authorities are claiming to have created a separate autism board/commissioner, but patently haven't, and it is very hard to pin anyone down about what provisions have been made.

    Typically for national government they have passed responsibility to local government while severely curtailing local government funds. So its a joke to suppose national government will "lift a finger" (that is make the slightest effort) on behalf of autism. They've placed the responsibility on local government.

    Hence the current review of how local authorities have progressed with this, and the opportunity for you to say they haven't.  You need to try and find out if your local authority has an independent autism partnership board and an independent commissioner, whether it has any data on who has autism in their authority area, whether they've provided training for staff, and whether they've taken steps to educate the police, health workers and educators.

    It will be hard to find this out. Most local authorities will lie about it. But then National Government knows this. It is harder to pin down lots of local authorities than get one national government (or even one ridiculously highly paid Government Minister) to answer a straight question accurately.

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