Skip to main content
Close Button
Donate
  • Replies 8 replies
  • Subscribers 35 subscribers
  • Views 1280 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

the NAS has no sting in its tail

autismtwo
over 11 years ago

I am an Autism Bee, I don't sting unless someone is destroying the flowers.

I would like a honest opinion of the NAS,, do they function correctly as a Autistic Organisation ?

I don't think so, they have no sting in the tail. When people with autism have major issues in there life, due to the system,, ie, education, courts, councils, health and all the other external proxies putting pressure on autistic children and adults,, the NAS is ineffectual and does not meet the needs of the autistic community.

Give you an example in my life.., the local authority in my area has no specialist adult autism assistance, no autism co-ordinator, non autism local strategy plan, my primary care is not under the autistic nice guidelines, the support workers are non-autistically trained, my GP knows nothing about Autism...

The NAS is a real letdown for the adult autistic community.

Any thoughts,, or is this just my own experience ?

PS ALEX ~ sorry I talk about these things, maybe goes against the brand & PR NAS.

Parents
  • over 11 years ago

    quote  crystal12 " I've noticed since I started coming on this site that contributors with Aspergers/HFA are vocal in their disappointment regarding how the nas represents their interests. I think this needs to be taken on board by the charity + acted upon"

    Crystal that is a lovely reply, I am glad that the net caught your son and your experience has been mostly good, you sound like a clued upped mother. So in sense what I pick up from your post, that there may be resource allocation politics going on and in sense the NAS is working but not working, depending on which part of the spectrum, demographic and age group.

    I do think that there is an adult representation gap in the NAS and think that just dealing with primary care of autistic children needs makes the NAS only a soft option policy organisation. Not wishing to upset the Autism Apple Funding Cart.

    The NAS never challenge(advocate) the establishment on behalf of the autistic community, so they are not a true voice of the autistic community, it is like they have been paid off with a huge amount of money as hush money to work towards a governmental agenda, not an independant agenda,, to me that is against the spirit of self determination of the autism community and they are speaking with fork tongue, pretending they are with the community but in reality they are a paid proxy of the establishment. NOT GOOD LONG-TERM OF THE AUTISM COMMUNITY, as in my case politically adult autism provision is near non - existant ! But it is okay the local authorities have failed to meet any of the targets years ago, but give them more time.... SHAME ON YOU NAS AND privy councils !!

    And I can't help moaning because it is not right and effects my every day life, but I am powerless to do anything about it, the NT's autistic children have been mostly catered for, so they know the out cry will be limited,, to a few voices, which alex can take care off.

     

Reply
  • over 11 years ago

    quote  crystal12 " I've noticed since I started coming on this site that contributors with Aspergers/HFA are vocal in their disappointment regarding how the nas represents their interests. I think this needs to be taken on board by the charity + acted upon"

    Crystal that is a lovely reply, I am glad that the net caught your son and your experience has been mostly good, you sound like a clued upped mother. So in sense what I pick up from your post, that there may be resource allocation politics going on and in sense the NAS is working but not working, depending on which part of the spectrum, demographic and age group.

    I do think that there is an adult representation gap in the NAS and think that just dealing with primary care of autistic children needs makes the NAS only a soft option policy organisation. Not wishing to upset the Autism Apple Funding Cart.

    The NAS never challenge(advocate) the establishment on behalf of the autistic community, so they are not a true voice of the autistic community, it is like they have been paid off with a huge amount of money as hush money to work towards a governmental agenda, not an independant agenda,, to me that is against the spirit of self determination of the autism community and they are speaking with fork tongue, pretending they are with the community but in reality they are a paid proxy of the establishment. NOT GOOD LONG-TERM OF THE AUTISM COMMUNITY, as in my case politically adult autism provision is near non - existant ! But it is okay the local authorities have failed to meet any of the targets years ago, but give them more time.... SHAME ON YOU NAS AND privy councils !!

    And I can't help moaning because it is not right and effects my every day life, but I am powerless to do anything about it, the NT's autistic children have been mostly catered for, so they know the out cry will be limited,, to a few voices, which alex can take care off.

     

Children
No Data