Does anyone else hate it when people say "everyone's on the spectrum"?

Hi everyone,

I've been feeling really low lately and something that hasn't helped is the subject matter of a class debate we had the other day. We began to talk about autism and Asperger's Syndrome, and this popular girl who has no communication or social difficulties whatsoever (in fact one of her many gifts is that she makes everyone love her) says, "Everyone's on the spectrum, it's just to what extent. My cousins are autistic, so I know." 

And...I know we're all entitled to our own opinions and beliefs. And it's not like that was the first time I had ever heard this theory, and to be quite honest, I'm not the most severely Asperger's person in the world. In fact, you'd probably say I had it quite mildly - particularly if you were an adult meeting me, as adults seem to bring out the best in me in a way that my peers can't. But when I saw her sitting there and just saying that, surrounded by all her friends kissing up to her and agreeing with her, whilst she'd just been going on about the party she was off to the next day, and the gig she was going to soon with another girl on our table, I just wanted to say, "OK. So you believe everyone's got autism. You try living a day in my life - seeing everyone make friends around you whilst you're left completely alone, no matter how hard you try. You try knowing you're different ever since you're old enough to think, and then tell me everyone's on the spectrum, because I think you might feel differently then. You've got no idea how lucky you are! I'd give anything to be accepted and supported by everyone like you are."

Now, I know she doesn't mean that everyone is autistic or AS to the point of diagnosis. She just means that we've all got little tendencies here and there. But, though I wouldn't say it to her or any of the kids at school as it makes me sound like I'm just making trouble or feeling sorry for myself or using any excuse to have a big, dramatic, overemotional reaction, I found it really difficult to hear that from her, and in my personal opinion it's actually quite an insensitive thing to say to/in front of someone with any form of autism. (She does know I have AS, and she says she believes it's true but I don't think she does - none of the others do.)

Am I being out of order? 

Thanks for reading, 

Liv x

Parents
  • longman said:

    We have recently lost the term Asperger's Syndrome, because as I understand it, officially, the new label is "autism" across the "spectrum".

    So we've certainly lost the identity of Asperger's Syndrome. What we've got instead is somewhere on a spectrum everyone is on, but less than full autism.

    As I understand it - and I'm not a specialist - the 'loss' of the term Asperger Syndrome is proposed in the American Psychiatric Association's (APA) latest edition of its Diagnostic and Statistical Manual of Mental Disorders (DSM-5). This is a pretty controversial document; the British Psychological Society has been expressing concern about it for a while. And just last week the National Institute of Mental Health (NIMH) withdrew support for DSM-5 in a fairly strong statement.

    Now the APA and the NIMH are both American organisations; diagnosis here in the UK and Europe doesn't follow it directly, although DSM has been influential on European diagnostic standards in the past. But it would, I think, be fair to say that DSM-5 is not enjoying the high degree of acceptance that its predecessors have had.

    I don't speak for the NAS here; I'm posting as someone with an interest in the field. But I'd like to try and reassure people, on my own account, that the Asperger Syndrome label is not being taken away by any central authority.

    Best wishes,

    Alex

Reply
  • longman said:

    We have recently lost the term Asperger's Syndrome, because as I understand it, officially, the new label is "autism" across the "spectrum".

    So we've certainly lost the identity of Asperger's Syndrome. What we've got instead is somewhere on a spectrum everyone is on, but less than full autism.

    As I understand it - and I'm not a specialist - the 'loss' of the term Asperger Syndrome is proposed in the American Psychiatric Association's (APA) latest edition of its Diagnostic and Statistical Manual of Mental Disorders (DSM-5). This is a pretty controversial document; the British Psychological Society has been expressing concern about it for a while. And just last week the National Institute of Mental Health (NIMH) withdrew support for DSM-5 in a fairly strong statement.

    Now the APA and the NIMH are both American organisations; diagnosis here in the UK and Europe doesn't follow it directly, although DSM has been influential on European diagnostic standards in the past. But it would, I think, be fair to say that DSM-5 is not enjoying the high degree of acceptance that its predecessors have had.

    I don't speak for the NAS here; I'm posting as someone with an interest in the field. But I'd like to try and reassure people, on my own account, that the Asperger Syndrome label is not being taken away by any central authority.

    Best wishes,

    Alex

Children
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