Does anyone else hate it when people say "everyone's on the spectrum"?

Hi everyone,

I've been feeling really low lately and something that hasn't helped is the subject matter of a class debate we had the other day. We began to talk about autism and Asperger's Syndrome, and this popular girl who has no communication or social difficulties whatsoever (in fact one of her many gifts is that she makes everyone love her) says, "Everyone's on the spectrum, it's just to what extent. My cousins are autistic, so I know." 

And...I know we're all entitled to our own opinions and beliefs. And it's not like that was the first time I had ever heard this theory, and to be quite honest, I'm not the most severely Asperger's person in the world. In fact, you'd probably say I had it quite mildly - particularly if you were an adult meeting me, as adults seem to bring out the best in me in a way that my peers can't. But when I saw her sitting there and just saying that, surrounded by all her friends kissing up to her and agreeing with her, whilst she'd just been going on about the party she was off to the next day, and the gig she was going to soon with another girl on our table, I just wanted to say, "OK. So you believe everyone's got autism. You try living a day in my life - seeing everyone make friends around you whilst you're left completely alone, no matter how hard you try. You try knowing you're different ever since you're old enough to think, and then tell me everyone's on the spectrum, because I think you might feel differently then. You've got no idea how lucky you are! I'd give anything to be accepted and supported by everyone like you are."

Now, I know she doesn't mean that everyone is autistic or AS to the point of diagnosis. She just means that we've all got little tendencies here and there. But, though I wouldn't say it to her or any of the kids at school as it makes me sound like I'm just making trouble or feeling sorry for myself or using any excuse to have a big, dramatic, overemotional reaction, I found it really difficult to hear that from her, and in my personal opinion it's actually quite an insensitive thing to say to/in front of someone with any form of autism. (She does know I have AS, and she says she believes it's true but I don't think she does - none of the others do.)

Am I being out of order? 

Thanks for reading, 

Liv x

Parents
  • Sorry but that's not an accurate representation of autism. You can define light by means of its spectral differences, so its a progression across a scale or a continuum. But the distinction is not degree of disability, and the fact that certain parts of the spectrum are intercepted by water vapour is about their specific properties at that wavelength, nothing to do with a continuum (I've spent much of my life working with sensors and the relationship of the spectrum to natural life and I used it a lot in my teaching).

    "Continuum" was a short sighted analogy picked on by scientists to describe the wide variation in manifestation and severity of autism. But it is only a "continuum" if it does define the varying degrees of severity, and I don't think it does.

    What it is doing, to our great disadvantage, is diluting public perception of autism. Because everyone can identify they are somewhere on this spectrum, they perceive that, while some people are way up the spectrum, and therefore disabled, there are a lot of people who seem to be only a lttle higher up the spectrum who could do more to help themselves, and therefore aren't worth sympathy. Why cannot these lower-down-the-spectrum people get off their backsides, stop moping and do something about their lot, and they could then move down the spectrum and be like the mass of ordinary people. The idea of a continuum weakens the sense of disability.

    Human behaviour involves complex interrelationships. One of the adverse effects of Autism is that it compromises an individual's ability to interact within these complex interrelationships. So what has that got to do with a continuum!!?

    I'm inclined to liken this to a food web (ecosystems lectures being part of my livelihood until recent retirement - so bear with this a moment). Food webs show us who eats whom, in the natural world. About twenty years ago they found a miracle pesticide that killed off several major crop pests, but it also killed off a spider that was consuming other crop pests. These pests multiplied without their main predator keeping down numbers, and they weren't affected by the new pesticide, so farmers ended up just as badly off.

    Autism involves complex interdependencies. Let's take just one - eye contact. It affects most of us. To scientists its just one parameter on the spectrum, and when someone appears to have OK eye contact, it is assumed that they've been largely cured of autism, or so it seemed during the first phase of disability support reviews).

    The scientists looked for gaze aversion, visibly avoiding eye contact, as their parameter. But many adults on the spectrum, probably as a response to being constantly criticised for not paying attention, find a way of looking in the general direction of the face, which gets NTs to shut up.

    But the real issue about eye contact is we miss out on a lot of visual based exchanges in social communication. So we need to compensate for this information loss.

    Either because of motor control issues, or lack of practice (or a lot of other interrelated factors) we are often bad at generating those visual signals for others to read.

    So our social interaction is poor, and this has "knock on" effects on many aspects of human social living - in the workplace, in education, in the home, at recreation, etc etc.

    We might be able to compensate, but the loss of the visual stimuli has pretty drastic implications. That's not a continuum. That's a complex web of interconnections in which we are under-effective participants.

    Some people can compensate by being good actors, and guessing what is needed to make up for the visual ground. But only a few can do that and, to know how to act you need to know what you are missing.

    Some people can make up for poor direct person to person communication by being writers, but a lot of people on the spectrum have dyslexia on top of their autism. Also rigidity of thinking, which is partly conditioned by lack of social interaction, affects how we write.

    The "continuum" concept is irrelevant. It was a clever buzz word coined by scientists. It is doing us nothing but harm persisting in comparing autism to a contnuum or spectrum. It is not an accurate representation.

Reply
  • Sorry but that's not an accurate representation of autism. You can define light by means of its spectral differences, so its a progression across a scale or a continuum. But the distinction is not degree of disability, and the fact that certain parts of the spectrum are intercepted by water vapour is about their specific properties at that wavelength, nothing to do with a continuum (I've spent much of my life working with sensors and the relationship of the spectrum to natural life and I used it a lot in my teaching).

    "Continuum" was a short sighted analogy picked on by scientists to describe the wide variation in manifestation and severity of autism. But it is only a "continuum" if it does define the varying degrees of severity, and I don't think it does.

    What it is doing, to our great disadvantage, is diluting public perception of autism. Because everyone can identify they are somewhere on this spectrum, they perceive that, while some people are way up the spectrum, and therefore disabled, there are a lot of people who seem to be only a lttle higher up the spectrum who could do more to help themselves, and therefore aren't worth sympathy. Why cannot these lower-down-the-spectrum people get off their backsides, stop moping and do something about their lot, and they could then move down the spectrum and be like the mass of ordinary people. The idea of a continuum weakens the sense of disability.

    Human behaviour involves complex interrelationships. One of the adverse effects of Autism is that it compromises an individual's ability to interact within these complex interrelationships. So what has that got to do with a continuum!!?

    I'm inclined to liken this to a food web (ecosystems lectures being part of my livelihood until recent retirement - so bear with this a moment). Food webs show us who eats whom, in the natural world. About twenty years ago they found a miracle pesticide that killed off several major crop pests, but it also killed off a spider that was consuming other crop pests. These pests multiplied without their main predator keeping down numbers, and they weren't affected by the new pesticide, so farmers ended up just as badly off.

    Autism involves complex interdependencies. Let's take just one - eye contact. It affects most of us. To scientists its just one parameter on the spectrum, and when someone appears to have OK eye contact, it is assumed that they've been largely cured of autism, or so it seemed during the first phase of disability support reviews).

    The scientists looked for gaze aversion, visibly avoiding eye contact, as their parameter. But many adults on the spectrum, probably as a response to being constantly criticised for not paying attention, find a way of looking in the general direction of the face, which gets NTs to shut up.

    But the real issue about eye contact is we miss out on a lot of visual based exchanges in social communication. So we need to compensate for this information loss.

    Either because of motor control issues, or lack of practice (or a lot of other interrelated factors) we are often bad at generating those visual signals for others to read.

    So our social interaction is poor, and this has "knock on" effects on many aspects of human social living - in the workplace, in education, in the home, at recreation, etc etc.

    We might be able to compensate, but the loss of the visual stimuli has pretty drastic implications. That's not a continuum. That's a complex web of interconnections in which we are under-effective participants.

    Some people can compensate by being good actors, and guessing what is needed to make up for the visual ground. But only a few can do that and, to know how to act you need to know what you are missing.

    Some people can make up for poor direct person to person communication by being writers, but a lot of people on the spectrum have dyslexia on top of their autism. Also rigidity of thinking, which is partly conditioned by lack of social interaction, affects how we write.

    The "continuum" concept is irrelevant. It was a clever buzz word coined by scientists. It is doing us nothing but harm persisting in comparing autism to a contnuum or spectrum. It is not an accurate representation.

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