Little boy with ASD ADHD PDA

Hey, We live in Australia, I'm a single mum with 4 kids i homeschool, my little fella with autism that I'm on here for is 8, he was diagnosed on the spectrum 2 yrs ago, it took 3 years to get enough support to help manage a pitence of his needs to be met.  We thought he may have ODD but it just didn't cut it, as All the "usual" methods of therapy and coping strategies etc aren't working for our boy. Until his O.T suggested to me last week that he shows All the signs of having PDA. So i researched this condition and what do ya know... He fits Everything. His dad and other family members on his dad's side have Very similar behaviours. On my side we have ADHD and Asperger's. I have more than one child on the spectrum, however the usual ways to manage the other kids behaviours just doesn't have the same outcome for my boy with pda. I've always been at a loss- until Now.

So I'm looking for new ways to communicate with him so we can build a relationship of trust and support, exactly How he needs it. Any advice or recommendations are So appreciated Thumbsup

Cheers 

Casey S

Parents
  • Think of PDA as Persevering Desire toward Agency. We can often feel overwhelmed and trapped by too many external sources and freeze. Have you ever walked into a shop and been so assaulted by the glaring lights, terrible sound quality and chemically manufactured scents (candles/incense) that you just turn around and walk out? This is a small example of seizing control in an environment that is oppressing ones senses. But imagine if this was a school or location you weren't allowed to leave? Add a problem with language and too young to understand the self's limitations and liberties. 

    We all need someone who can help us understand Step 1. And then Step 2 and so on, to learn in a state of being overwhelmed or to work with an environment to gain a sense of control within it. These are not simps tasks.

    If you haven't already, I always start with modifying anything that might affect me - natural fibres (clothing, bedding), minding tree fibres cool down the body, cotton is neutral, silk and wool keep the body at a perfect and warm temperature, while petroleum fibres are plastic. Natural filament lighting, no scented cleaning agents, non-complex decor, etc. Allow room for boredom which is healthy for the imagination and pre-fixed spaces of time to get lost in what he may enjoy. Build from there... 

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  • Think of PDA as Persevering Desire toward Agency. We can often feel overwhelmed and trapped by too many external sources and freeze. Have you ever walked into a shop and been so assaulted by the glaring lights, terrible sound quality and chemically manufactured scents (candles/incense) that you just turn around and walk out? This is a small example of seizing control in an environment that is oppressing ones senses. But imagine if this was a school or location you weren't allowed to leave? Add a problem with language and too young to understand the self's limitations and liberties. 

    We all need someone who can help us understand Step 1. And then Step 2 and so on, to learn in a state of being overwhelmed or to work with an environment to gain a sense of control within it. These are not simps tasks.

    If you haven't already, I always start with modifying anything that might affect me - natural fibres (clothing, bedding), minding tree fibres cool down the body, cotton is neutral, silk and wool keep the body at a perfect and warm temperature, while petroleum fibres are plastic. Natural filament lighting, no scented cleaning agents, non-complex decor, etc. Allow room for boredom which is healthy for the imagination and pre-fixed spaces of time to get lost in what he may enjoy. Build from there... 

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