tough few days cant stop crying tonight

hey all, Im new here. quick info about us.... I have a boy almost 7 years old awaiting diagnosis for what seems like forever. We've had all sorts of reports from educational psychologist and the other people i forget who they are, all say 'off the record' mild autism/ aspergers. Hes had this going on from nursery, our diagnosis appointments just keep getting put back dates like we dont matter! i cant handle him i really do try so hard, i read up on how to help him. Im a single mum half the year as hubby works away, and our sons been to two schools in the few years he's been educated and hes not able to handle other children and at both schools serious bullying went unoticed leading me to try home education.

Hes also epileptic and the meds he was on made him even more violent, i had to hide anything sharp as he tried stabbing me with a sharp pencil and even stabbed himself later on.

The thing is no one will help with coping strategies or advice until hes been diagnosed, its putting a huge strain on my marriage as hubby wants to work away more. i have no family to help so im with my boy 24/7 i love him so much but feel myself bracing myself for another punch or attack when somethings too much for him (like shopping/ walk in the park, simple things).

He's started hurting our animals lately too in his fits of rage, thing is i dont want to give into him all the time he needs disapline but right now he refuses to listen to a word i say. i just feel so lost Frown

Parents
  • Hi again - you are doing brilliantly.  You are being let down by services which should be helping you.  You need to keep on at them, even going to your MP if necessary.  I know the last thing you need is any more to do but you have to keep pushing.  A number of years ago I got very disheartened + tried + temporarily gave up on pursuing something for my son.  In the end I got there, basically because I wouldn't leave the authorities in peace, including writing letters telling them I'd take things further.  I know how it feels to be so tired day in day out.  That's why they need to get their finger out with his diagnosis because that's the key to getting things put in place which will help the both of you.  You know you need some rest + relaxation in your life but haven't any way of getting it as things stand.  Your life needs some balance back in it.  Is there a befriending service in your area?  If there is I'd check it out to see if it could be suitable.  I hope things get moving with the diagnosis soon.  You are a brilliant mum, but everyone needs enough support + a break from the usual. 

Reply
  • Hi again - you are doing brilliantly.  You are being let down by services which should be helping you.  You need to keep on at them, even going to your MP if necessary.  I know the last thing you need is any more to do but you have to keep pushing.  A number of years ago I got very disheartened + tried + temporarily gave up on pursuing something for my son.  In the end I got there, basically because I wouldn't leave the authorities in peace, including writing letters telling them I'd take things further.  I know how it feels to be so tired day in day out.  That's why they need to get their finger out with his diagnosis because that's the key to getting things put in place which will help the both of you.  You know you need some rest + relaxation in your life but haven't any way of getting it as things stand.  Your life needs some balance back in it.  Is there a befriending service in your area?  If there is I'd check it out to see if it could be suitable.  I hope things get moving with the diagnosis soon.  You are a brilliant mum, but everyone needs enough support + a break from the usual. 

Children
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