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tough few days cant stop crying tonight

mouse2

hey all, Im new here. quick info about us.... I have a boy almost 7 years old awaiting diagnosis for what seems like forever. We've had all sorts of reports from educational psychologist and the other people i forget who they are, all say 'off the record' mild autism/ aspergers. Hes had this going on from nursery, our diagnosis appointments just keep getting put back dates like we dont matter! i cant handle him i really do try so hard, i read up on how to help him. Im a single mum half the year as hubby works away, and our sons been to two schools in the few years he's been educated and hes not able to handle other children and at both schools serious bullying went unoticed leading me to try home education.

Hes also epileptic and the meds he was on made him even more violent, i had to hide anything sharp as he tried stabbing me with a sharp pencil and even stabbed himself later on.

The thing is no one will help with coping strategies or advice until hes been diagnosed, its putting a huge strain on my marriage as hubby wants to work away more. i have no family to help so im with my boy 24/7 i love him so much but feel myself bracing myself for another punch or attack when somethings too much for him (like shopping/ walk in the park, simple things).

He's started hurting our animals lately too in his fits of rage, thing is i dont want to give into him all the time he needs disapline but right now he refuses to listen to a word i say. i just feel so lost Frown

Parents

  • Hi - things must be so difficult for the both of you.  This thing with getting a diagnosis sounds odd to me.  What's this "off the record" phrase??  Why off the record?  I always thought that once you were on the diagnostic pathway then you would either get a diagnosis of autism or not.  I would check out info via the nas site + also the ipsea site if you have enough time.  I know how difficult it can be to keep pressing on when things are so difficult.  Unfortunately, from my experience, you do have to keep on at the various organisations to get where you need to be.  

    Please note stranger's advice.  It is relevant.

    Schooling - are you still home educating your son?  How's it going.  A number of parents here home educate so it's worth checking out their posts + how they came to the conclusion that was the best thing to do.

    When my son was little I was a single parent.  I didn't know many people in my neighbourhood + didn't have family locally.  I do understand how difficult it can be.  

    You don't have to wait for a diagnosis to implement coping stragegies.  Just do it.  Check things out via the home pg + the posts.  You can take the initiative + make a difference to your child's life + your own.  It sounds like he's under a load of stress + that's why he's doing some of the things you mention.  Think about how autism affects him as an individual with his own personality.  Does he has sensory problems? Do some things cause problems such as: certain noises, tastes, textures, smells etc.  Is he easily overwhelmed when you go out?   Fear of the unknown, crowds, etc. What affects him?  Has he a regular routine day in-day out?  A timetable he can look at, whether pictoral or verbal which he understands so it settles him down?   Just a few thoughts which may help him + so will help you.

    We all understand on here + are sympathetic because we've been there ourselves.  Sometimes we return "there" every so often, sometimes for longer than we'd expect.  We'll always try to be of help + at times look for help from others.  You'll feel a bit better when you've regained control over your daily life with your little one.  He'll feel better too.

Reply

  • Hi - things must be so difficult for the both of you.  This thing with getting a diagnosis sounds odd to me.  What's this "off the record" phrase??  Why off the record?  I always thought that once you were on the diagnostic pathway then you would either get a diagnosis of autism or not.  I would check out info via the nas site + also the ipsea site if you have enough time.  I know how difficult it can be to keep pressing on when things are so difficult.  Unfortunately, from my experience, you do have to keep on at the various organisations to get where you need to be.  

    Please note stranger's advice.  It is relevant.

    Schooling - are you still home educating your son?  How's it going.  A number of parents here home educate so it's worth checking out their posts + how they came to the conclusion that was the best thing to do.

    When my son was little I was a single parent.  I didn't know many people in my neighbourhood + didn't have family locally.  I do understand how difficult it can be.  

    You don't have to wait for a diagnosis to implement coping stragegies.  Just do it.  Check things out via the home pg + the posts.  You can take the initiative + make a difference to your child's life + your own.  It sounds like he's under a load of stress + that's why he's doing some of the things you mention.  Think about how autism affects him as an individual with his own personality.  Does he has sensory problems? Do some things cause problems such as: certain noises, tastes, textures, smells etc.  Is he easily overwhelmed when you go out?   Fear of the unknown, crowds, etc. What affects him?  Has he a regular routine day in-day out?  A timetable he can look at, whether pictoral or verbal which he understands so it settles him down?   Just a few thoughts which may help him + so will help you.

    We all understand on here + are sympathetic because we've been there ourselves.  Sometimes we return "there" every so often, sometimes for longer than we'd expect.  We'll always try to be of help + at times look for help from others.  You'll feel a bit better when you've regained control over your daily life with your little one.  He'll feel better too.

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