tough few days cant stop crying tonight

hey all, Im new here. quick info about us.... I have a boy almost 7 years old awaiting diagnosis for what seems like forever. We've had all sorts of reports from educational psychologist and the other people i forget who they are, all say 'off the record' mild autism/ aspergers. Hes had this going on from nursery, our diagnosis appointments just keep getting put back dates like we dont matter! i cant handle him i really do try so hard, i read up on how to help him. Im a single mum half the year as hubby works away, and our sons been to two schools in the few years he's been educated and hes not able to handle other children and at both schools serious bullying went unoticed leading me to try home education.

Hes also epileptic and the meds he was on made him even more violent, i had to hide anything sharp as he tried stabbing me with a sharp pencil and even stabbed himself later on.

The thing is no one will help with coping strategies or advice until hes been diagnosed, its putting a huge strain on my marriage as hubby wants to work away more. i have no family to help so im with my boy 24/7 i love him so much but feel myself bracing myself for another punch or attack when somethings too much for him (like shopping/ walk in the park, simple things).

He's started hurting our animals lately too in his fits of rage, thing is i dont want to give into him all the time he needs disapline but right now he refuses to listen to a word i say. i just feel so lost Frown

Parents
  • thank you for your reply, I couldnt get to see his epilepsy consultant as he was off for two weeks and the nurse wouldnt give any other advise than talk to the consultant! the secretary said i couldnt see any other consultant as epilepsy complex. gp i couldnt get into so i ended up at the pharmacy as i needed help for him and no idea what to do. he trashed the pharmacy but they were brilliant and said it was the meds and asked me if he was autistic too! they called gps and got me in later in the eve which was better than nothing, i insisted he came off them but you have to do it gradually so was a long processwhich took 6 weeks. hes just finished them about a week ago.

    Ive chilled looking at the stars this evening and decided tomorrow is a new day. we will decide what he likes doing lesson wise and ways to reward him for good behaviour. thank you for the tips, its so nice talking to someone with asd and getting his perspective

Reply
  • thank you for your reply, I couldnt get to see his epilepsy consultant as he was off for two weeks and the nurse wouldnt give any other advise than talk to the consultant! the secretary said i couldnt see any other consultant as epilepsy complex. gp i couldnt get into so i ended up at the pharmacy as i needed help for him and no idea what to do. he trashed the pharmacy but they were brilliant and said it was the meds and asked me if he was autistic too! they called gps and got me in later in the eve which was better than nothing, i insisted he came off them but you have to do it gradually so was a long processwhich took 6 weeks. hes just finished them about a week ago.

    Ive chilled looking at the stars this evening and decided tomorrow is a new day. we will decide what he likes doing lesson wise and ways to reward him for good behaviour. thank you for the tips, its so nice talking to someone with asd and getting his perspective

Children
No Data