Has anyone undergone stem cell treatment for autism?
Has anyone undergone stem cell treatment for autism?
Hello everybody,.
It's beena while since I posted a comment on here.
Just thought I'd share my new found therapy for my son. He's now nearly 10 and he's made considerable progress in his communication, to the point that he's able to fluently express himself now. I'm still addressing his Global Delay and 6 months ago I have started seeing a homeopath specialised in this CEASE (Complete Eradication of Autism Spectrum Expression).
No point in considering other avenues as they are accompanied by high risks (extremely invasive) and why not say it, probably impossible to finance them.
I am finding homeopathy very friendly and in tune with the human body, not subjecting my son to any undue stress.
If you want to have a look at this for your loved ones, and still are considering ways of treatment for autism, then I'd recommend CEASE program. I am not jumping here to say that I have cured my son, but merely helping him to expel some of the pollutants in his body and give him a chance to a less struggling future.
If you are interested in more details, please let me know. I'd be more than happy to help. Other parents in my son's school have started looking into homeopathy for their children, since my son's teachers have seen the considerable chances in his behaviour.
My warmest wishes for your Christmas!
Bella
Hi Jillex,
To re-iterate, from the information I have currently reviewed, it appears that stem cell therapy in this instance is intended to aid the repair of a certain section of the brain which it is (in this case at least) believed to have been or become damaged.
However, the preparation and method of treatment does not seem like it could be effective in its assigned application especially as I expect the damage as described would have occurred through anoxia- causing scar tissue, or genetic abnormality - therefore unaltererd stem-cells would not produce a different cell structure). Additionally, confirmation of an abnormality in the brain would need to be gained in each instance as a minimum.
Please note that I am not an authority on this, and do not know each individual claimant's treatment procedure.
My personal opinion is that your efforts and funds are better placed elsewhere.
I am currently looking into Stem Cell therapy for my 7 year old non verbal daughter after speaking with someone locally who has undergone the treatment for her son with absolutley success.
Just to add, I find it horribly offensive that it is thought a terrible thing I should want to 'cure' my child. Of course I want to cure her. As it stands right now she has no sence of danger, she cannot speak and only understands very basic commands. So when myself and my partner pass away one day who will look after her? She deserves all the help she can get to become and independant person, to be able to live her life when we go.
I am going to go ahead and assume the people saying this have children on the spectrum who dont have the condition in such a tragic way, if not why on earth would you not want your child to recover?
Hi classic codger,
I just wanted to point out the use of language in this post. It could be perceived as being too judgemental/critical and potentially be offensive to some users of the Community. I would also advise that langauge such as the 'asylum' are quite derrogatory towards past attitudes towards mental health and therefore kindly ask you to look at such langauge before posting.
You are a very important member of our Community and this is in no way meant to criticise you, we just want to ensure that the use of language in posts doesn't upset other users. Thanks for your understanding.
Sofie Mod
There is currently no cure for Autism, but many researchers suggests that Stem Cells may have the potential for further research. There is a similar post here on Stem Cell and Autism that suggests the same.
NAS5794 said:A person's character isn't determined by whether or not they have autism. There's nothing to treat in either party; we're all just people. My opinion.
Hear hear!
This is my personal opinion. I don't argue my personal opinions, just for them.
How about 'tretament' for being NT? Their capacity for being the most illogical, spiteful, self-destructive creature on this planet leaves me staggered. I pity the poor creatures and their lack of insight, but what can you do? No-one is researching 'treatment' for them, because they collectively agree that their unsanity is 'normal'.
The inmates are running the asylum.
"... stem cells are introduced intravenously..."
This makes no sense. Surely they would have to be introduced directly to the affected tissue (in this case the whole temporal lobe??) to be effective? This would be extremely risky (how do you promote generation of brain cells rather than bone, for example and how do you prevent formation of cancerous growths?)! Also; if hypoxia is the cause, could there be tissue burring or scarring? If so, how is this removed before treatment? It is also suggested that this condition may be autoimmune, and so ongoing. Surely then this type of treatment, in isolation, would be ineffective?
The paper suggests the requirement for MRI and a battery of biochemical tests prior to selection for treatment. I.e. a diagnosis of autism alone should not be enough to pursue this treatment.
The supplied research paper does not, in my opinion, offer compelling evidence that this type of treatment would be effective, largely as the treatment and proposed treatment mechanisms have, at least at the time of the generation of the paper, not been proven even in animal models and are largely theoretical. I am also uncomfortable with the phrases "...in complance with local ethics laws.." (without defining where these may be for) and "...anecdotal evidence supplied by our partners...". It is also unclear quite how closely the treatments supplied by the agency match those indicated in the paper.
Hi, who are the moderators. have tried (communitymanager@nas.org.uk) but no successs
You can't, I think the only way of doing that is to ask the moderators to forward a message for you.
@lita1975 Hi. I have been trying to find just such a community but have had no luck. Our 4 year old son was diagnosed some 15 months ago, is non verbal with learning difficulties. I am looking for parents from the UK that I can meet/communicate with to discuss this treatment before taking the step with The Stem Cell Institute in Panama- any direction from anyone would be helpful.
I would like to add to this post as a parent about to take my son for adult stem cells. I have myself been researching this for well over a year and my advise to any parent considering this is do the same. I have chosen The Stem Cell Institute in Panama after following a family on YouTube and meeting a community of people here in the UK and America who use this clinic. My advise is stay clear from embryonic or fetal stem cells as there is not enough research done yet and there have been reports of tumors developing after 2, 3, 4 years of treatment....not in all cases granted but all the same there is a risk and still not enough known about them. I am not advertising the clinic I am using but hope that with this information it can guide anyone thinking about stem cells to look for simular options. Adult stem cells are a safer option by far and have been used for over 25 years around the world, but they are prone to being rejected by the hosts body if administration is not performed correctly. Red and white blood cells need to be separated in order for a better result and other than this clinic they seem to be the only one I can find that use this method, they are also used by the FDA for clinical trials. The treatment is not cheap and I have had to fundraise to get the money together but it is possible....it can be done. Be very careful and research, research, research.
Without any plausible cause-effect route or scientific efficacy testing which rules out the placebo effect and attribution of random improvements in some patients to the treatment itself (which is what most anecdotes do), you are giving potentially dangerous medicine for at best a slim hope and at worst a belief sold to you by a profiteering snake oil seller.
I believe in neurodevelopmental programs, stimulating demand on the brain and attempting to teach it to normalise the sensory inputs to a level where the ASD person can cope with everyday situations. Love, praise, encouragement, and teacher / caregivers / parents who meet the child where they are currently at are crucial.
This is obviously much harder for those who are low functioning, and for NT carers of low functioning ASD kids in particular. But in my opinion it is about getting the best outcome for the person you have in front of you.
My son's ASD is part of him, it gives him some of the best elements of his character and it provides him with joy not available to NT people. It also brings challenges and difficulties. I would love to remove the second, but not at the cost of the first. I strongly believe that ASD is a difference, not necessarily a disability. Many of the problems leading to day to day struggles can be overcome with sensory therapy, intentional teaching about social interaction, and patience and acceptance from peers. Again, this is easier to say for high functioning ASD people, and there are more struggles for low functioning people - but I'm afraid I'm quite offended by the idea that autism itself is something "bad" which should be "fixed" rather than a different way of being.
To me it's like trying to make everyone male because being female is "different". We could correct all those tricky differences instead of dealing with the possibility of diversity. Yes there are some biological annoyances involved in being female, but there are also some wonderful positives. Happily, women have the benefit of being a majority of the population, and it is not generally suggested that we should "fix" them, whereas ASD people are a minority it is common to hear this view.
*rant over*
