Hi folks -
I haven't posted for a while but I'm still here!
I had a rough day yesterday but was greatly encouraged by my local hospital which is often criticised.
I went to the Dr with what I thought was a relatively minor ailment but it turns out it could be quite serious and I was sent to the hospital straight away which freaked me out being autistic.
BUT the hospital let my Mum come with me and into every area so she could calm me down, they talked to me about everything they were doing, explained all the possbilities of my condition and what would happen in each case. The consultant spent ages with me and was brilliant. By the time I got home I was really calm but a bit scared of what will happen later this week when they may have to operate.
I have to go back tomorrow and I can take Mum again and I have been told I will have the same nurse and consultant which helps because I know them now.
I was really impressed that they took me seriously and my autism and it has made a difficult thing much easier to bear - I have often had serious meltdown in hospital situations but not this time.
My trust and hope in 'the system' has been partially restored.
the problem - I thought I had an eye infection but I have a mass behind my eye which could be a brain tumour (at worse) and obviously needs investigating.
I'll keep in touch - it's a difficult time.
