Parents treat my OCD as me being deliberately difficult

 

My parents do not understand me. Owing to my OCD, a complication of my AS, I have fears surrounding contamination and some of these fears influence what food I eat. For example, I refuse to eat meat unless it comes in a ready meal, ie it has already been cooked prior to heating, according to factory specifications. This, of course, causes massive conflict at home. My mum cooked fish cakes for tea today, but I refused to eat them because they were cooked from raw ingredients. My OCD thoughts say, 'what if the fish has not been cooked properly?', even though my mum now over cooks meat because of my obsession.  I know that these fears are out of control, but I have so many fears to contend with, including extreme health anxiety that causes panic attacks.  I feel that these latter fears are the most disabling right now, and because I eat a balanced diet-meat and fish are the only foods I avoid, apart from ready lamb curry-I feel that me avoiding meat is not a big deal. But my parents get VERY angry, almost taking it as a personal insult.  It feels like I am being punished for something I cannot control-my obsessive thoughts that make me feel nervous and insecure. I told my parents that I would be perfectly happy as a vegetarian and that they can continue eating meat and fish, so what is the big deal? But they still refuse to accept this. If I lived alone I could control what I eat and my life would be far less stressful. I am on the local housing list, but I see no sign that I will be moving out in the near future, the housing situation being so dire

  • Your parents typify the cureby, vaccines/mercury movement.  At their heart is a pathological rejection and passionate hatred of what they see as non-normal behaviour.  People are either okay, or mental and thus should become okay.  I am sure they do not see any of their behaviour in these terms.  There is your great quest, to educate them.  Try dvd films about autistic people, books and stuff on the internet?

    What you have described is a raw, truthful depiction of the above.  Very well written indeed.  They could be buying you veggie burgers etc, but they'd rather create these scenario's so everyone can get upset.  It's typical of families.  Everyone lives together all their lives, and they get into hurting themselves let alone you.  

    Sounds like your family are behaving like typical, neurotic neurotypicals.  It's natures way of saying RUN FOR IT.  

    Get out of there fast.  Become a vegan and good luck mate!

  • I just thought I might venture to ask whether, since you like ready meals, would your parents not allow you to cook you own meals. You don't say whether you are happy to have a ready meal microwave cooked rather than oven cooked? If you were happy with microwaved it might be a fairly simple matter at mealtimes just to prepare your own but still eat with the family.

    I'm the reverse with ready meals but not because of aspergers - maybe the Scotsman in me is convinced I'm being undersold portions and quality, so I tend to buy raw meat and raw vegetables and cook to my requirements. Most times though I'm happy just to add things to rice, or pasta, or potatoes, or cous-cous.

  • Hi Hope

    Thank you for sharing your thoughts.  I'm glad that here is somewhere where you feel you can vent a little.  I'm not sure I have any great advice but just wanted to acknowledge that it sounds as if you have really good insight into your limitations, what you find you can cope with and have even thought about how others can cope better with your differences.  It certainly sounds difficult to be in a family where they seem annoyed at your ways but like you say, you know you and I'm sure you will continue to develop your sense of self.  You are on the right road... :-)  I hope my son is as insightful as you when he is your age :-)

  • To make matters worse, my dad talks about me to my brother. I don't think they have the right to do this. It makes me feel like a complete outsider and it wrecks my already fragile self-esteem. I can hear them talking about me right now. I have mental challenges, challenges that will be with me all my life. But I am not depressed, I just battle with my anxieties every day and accept who I am. But my family seems to pity me, but I don't want to be pitied. Life is hard, but this life is all I have ever known. I am disabled, but I do not have a disorder. I am autistic, but I do not have anything wrong with my personality. And yet I say these things and still have doubts about my psyche, which is why I believe my self-esteem is quite low and why I am writing this right now

  •  

    Further to the above, I have been misunderstood by my parents my entire life. I once threw a tantrum when I was a teenager because my mum refused to buy me a magazine on babies-my interest at the time. To me, it felt as though my whole world was coming to an end and that is why I got so angry. Of course, I was not diagnosed with AS at this age, so my parents just reacted as though I was an obnoxious brat. 

    Most arguments in the house stem from my obsessions, usually-but not always-OCD related. My mum sometimes reacts to me saying, 'have you washed your hands?' by walking out of the house. My dad then mutters, 'you are mentally ill..nuts...nuts', to which I respond by throwing a tantrum because I am so angry that I am so misunderstood. I do not think I am 'nuts' or 'mentally ill', I simply have asperger's syndrome, a condition that has been with me all my life. Unfortunately, the asperger's, in my view, has generated my OCD thoughts, probably because I did not get help at the right time.  I do not want there to be arguments all the time. I just wish that my OCD could be ignored by my parents, so that I can deal with it on my own.