Waiting for a diagnosis, how do i prepare?

Hi

Im British and i have lived in Iceland for the past 4 years. Im 24.

It was first mentioned in 2016 that i should get a referal for a diagnsis (when i still lived in the UK) but i didnt tell anyone about it and just got on with it. 

My broyher got an autism diagnosis last year so i decided to do a bit of research and i had a light bulb moment. At the end of last year i finally told my boyfriend about it and my family. My boyfriend was brought up in a totally different way so he really freaked out and im not sure if he is on the same page. But my family agree as they noticed that me and my brother have almost exactly the same traits.

Luckily i could just do the referall on my own, no need to see a doctor first which is a huge relief to me.

Ive always struggled with social interaction, communication and obsessibe behaviours and mental health problems since i was a small child ive been in and out of therapy since i was 11 and no one could give me a clear diagnosis, ive been told i have depression, anxiety, bipolar, the list goes on. Doctors just gave me anti depressants in the end which dont really do anything.

How do i prepare for my diagnosis? Communication is a huge problem for me as i get so overwhelmed and i just shut down. Should i make a diary and write everything down? If so what should i write? Im so confused especially because i dont know what to expect which is making me feel constantly on edge.

Any advice is greatly appriciated

Parents
  • Hi Jess

    You really don't need to worry - any assessor with experience of ASD will spot you a mile away - and from there onwards they are just measuring you for what your main weaknesses are and what support you might need.

    It might help them if you make a short list of your main problems and maybe if you've had any profound instances where your behaviours really stuck out and made you feel awkward in front of others.   

    btw-  the feeling on edge is totally normal - we all have anxiety,  Smiley

    If it helps, try listing some of your problems on here - people will bounce back with their experiences too.

    Best wishes.

Reply
  • Hi Jess

    You really don't need to worry - any assessor with experience of ASD will spot you a mile away - and from there onwards they are just measuring you for what your main weaknesses are and what support you might need.

    It might help them if you make a short list of your main problems and maybe if you've had any profound instances where your behaviours really stuck out and made you feel awkward in front of others.   

    btw-  the feeling on edge is totally normal - we all have anxiety,  Smiley

    If it helps, try listing some of your problems on here - people will bounce back with their experiences too.

    Best wishes.

Children
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