Is anyone here getting any help from NAS ?

Does anyone here get actually get any help from NAS ?

My experience is you ask for help and they send you a bucketload of PDF'S of other organisations. Am I wrong to have expected more ?

The chief executive gets paid 140 grand a year, is it right that someone can live in luxury on that kind of salary from charitable donations ? Not even counting the other 20 people on stupid salaries comes to over 2 million quid ...no doubt plus expenses.

I thought charities existed to help others but obviously they are more interested in helping themselves.

Parents
  • All that would need to be done, as sadly everyone including GPs, are motivated by money, is to give GP's a premium on the number of autistic people registered with them. This money being subject to carers and the autistic person's feedback on the service they provide. This service should then be house calls, if severely autistic and/or ad hoc problems with attending surgery. It should provide a designated GP wherever possible to deal  with a particular autistic patient, to ensure minium disruption and the need to relay same info on each visit. It should also mean the GP can be phoned directly when the autistic person is about to arrive at the surgery, so there is no delay that could lead to meltdown and distress. NAS can provide a crib sheet to GPs on the basic problems of autism per se, and the carer can fill in on the individuals particular needs. 

    This is not a lot to ask and NAS should put forward such a request to the Minister for Health, and each member of NAS, and indeed any autistic person or carer should be encouraged to contact their local MP by a Facebook campaign. It is not rocket science and should have been done years ago. It is no more than a registered patient in any event is entitled to under NHS legislation.

    Despite this, quite the reverse is happening in most GP practices, as they are run for maximum profit, which means efficient processing of patients. GP's use any excuse to get autistic people removed from their lists, it happened to my daughter and obviously our whole family, and we were left without a GP for two months at a very critical time. That GP refused to come too our home to see our daughter or to assist in any way with her aggressive behaviour and terrible anguish- it turned out that she had been impacted with pooh for years.

    Come on NAS lets get some basic help which we are entitled to by law already.

     

     

Reply
  • All that would need to be done, as sadly everyone including GPs, are motivated by money, is to give GP's a premium on the number of autistic people registered with them. This money being subject to carers and the autistic person's feedback on the service they provide. This service should then be house calls, if severely autistic and/or ad hoc problems with attending surgery. It should provide a designated GP wherever possible to deal  with a particular autistic patient, to ensure minium disruption and the need to relay same info on each visit. It should also mean the GP can be phoned directly when the autistic person is about to arrive at the surgery, so there is no delay that could lead to meltdown and distress. NAS can provide a crib sheet to GPs on the basic problems of autism per se, and the carer can fill in on the individuals particular needs. 

    This is not a lot to ask and NAS should put forward such a request to the Minister for Health, and each member of NAS, and indeed any autistic person or carer should be encouraged to contact their local MP by a Facebook campaign. It is not rocket science and should have been done years ago. It is no more than a registered patient in any event is entitled to under NHS legislation.

    Despite this, quite the reverse is happening in most GP practices, as they are run for maximum profit, which means efficient processing of patients. GP's use any excuse to get autistic people removed from their lists, it happened to my daughter and obviously our whole family, and we were left without a GP for two months at a very critical time. That GP refused to come too our home to see our daughter or to assist in any way with her aggressive behaviour and terrible anguish- it turned out that she had been impacted with pooh for years.

    Come on NAS lets get some basic help which we are entitled to by law already.

     

     

Children
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