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Stomach disorder

Blue angel 3

I have the most wonderful adult  son kind generous and beautiful.  He was diagnosed with Aspergers as a child   Alll his life he has suffered server stomach pains as a baby it was colic as a child it was anxiety now it’s IBS  he has no life we, e had test after test and yet still he goes through this almost daily my GP now tells him it’s his brain telling his gut  he can’t go out because he never knows when he’s going to get a flare up I think we have tried every pill and potion the NHS has to offer  I can’t watch him suffer like this having constant pain and no life  I’m thinking of trying to get him a private capsule endoscopy. I’m just wondering if any one suffers this way too

Parents

  • A Crohn's sufferer since 2012 I have seen many specialists inc. Harley St, dietitians, nutritionists, gastro., had MRI, MRe, Small Bowel, Barium Dye, Colonoscopyies, Sigmoids, etc etc. I have learned that western medicine can only offer you drugs that suppress the immune response your body is triggering to fight a problem. You need a holistic eastern mentality to help treat your mind and body connection. Meditate every morning and evening, Download the Calm app.

    But, there is hope for us all when it comes to diet. An app. developed by Dr Tim Spectre (The Diet Myth) called 'ZOE' has been launched in America. Due in the UK in 2021 sometime, tested on 3000+ sets of identical twins' microbiome, will offer tailored nutrition. This will change the life of many of us.

    There is also a vaccine being developed in Oxford to stop Crohn's disease! Blew my mind. Not too far off now as has been trials for some time.

    Good luck to us all Slight smile

Reply

  • A Crohn's sufferer since 2012 I have seen many specialists inc. Harley St, dietitians, nutritionists, gastro., had MRI, MRe, Small Bowel, Barium Dye, Colonoscopyies, Sigmoids, etc etc. I have learned that western medicine can only offer you drugs that suppress the immune response your body is triggering to fight a problem. You need a holistic eastern mentality to help treat your mind and body connection. Meditate every morning and evening, Download the Calm app.

    But, there is hope for us all when it comes to diet. An app. developed by Dr Tim Spectre (The Diet Myth) called 'ZOE' has been launched in America. Due in the UK in 2021 sometime, tested on 3000+ sets of identical twins' microbiome, will offer tailored nutrition. This will change the life of many of us.

    There is also a vaccine being developed in Oxford to stop Crohn's disease! Blew my mind. Not too far off now as has been trials for some time.

    Good luck to us all Slight smile

Children
  • in reply to JT

    I was involved with a UK trial of extra-corporeal leukocyte-apheresis where the white cells are removed from the blood - it worked brilliantly.   It's a drug-free treatment over 10 weeks - pretty tough going - but excellent results.

    It's now a standard treatment in many countries but the NHS won't pay for it.