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Stomach disorder

Blue angel 3

I have the most wonderful adult  son kind generous and beautiful.  He was diagnosed with Aspergers as a child   Alll his life he has suffered server stomach pains as a baby it was colic as a child it was anxiety now it’s IBS  he has no life we, e had test after test and yet still he goes through this almost daily my GP now tells him it’s his brain telling his gut  he can’t go out because he never knows when he’s going to get a flare up I think we have tried every pill and potion the NHS has to offer  I can’t watch him suffer like this having constant pain and no life  I’m thinking of trying to get him a private capsule endoscopy. I’m just wondering if any one suffers this way too

Parents

  • Hi - Capsule endoscopy misses lots of smaller things on the way through the intestine - a standard colonoscopy is more usual and is usually more thorough.- they can stop and concentrate on any areas of interest and take biopsies of anything unusual.    

    I was diagnosed with ulcerative colitis 20-odd years ago and was having 3 major flares per year so I was getting through a lot of Prednisolone steroids to repair me.   I avoided hospital by looking after my body.

    I found playing tricks with Loperamide (Imodium) meant I could live a controllable life.    If I needed to travel, 6 imodiums meant I was good for the day - safe a able to enjoy the day - and then havea recovery day after to empty out.

    If it turns out to be Crohn's or Colitis, be aware that the cancer risk increases year on rear so a colectomy may be on the cards in the future.

Reply

  • Hi - Capsule endoscopy misses lots of smaller things on the way through the intestine - a standard colonoscopy is more usual and is usually more thorough.- they can stop and concentrate on any areas of interest and take biopsies of anything unusual.    

    I was diagnosed with ulcerative colitis 20-odd years ago and was having 3 major flares per year so I was getting through a lot of Prednisolone steroids to repair me.   I avoided hospital by looking after my body.

    I found playing tricks with Loperamide (Imodium) meant I could live a controllable life.    If I needed to travel, 6 imodiums meant I was good for the day - safe a able to enjoy the day - and then havea recovery day after to empty out.

    If it turns out to be Crohn's or Colitis, be aware that the cancer risk increases year on rear so a colectomy may be on the cards in the future.

Children
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