# Daily Updates #

just a space for people can say what they have been doing today so we can keep up and in touch

Parents
  • Another day in hospital, I'm due to go home tomorrow.

    Not felt as sick today so that's good. I've to get 9 bags of this infusion and I've had 7 so I'm counting down to completing the course (last bag should go up at midnight).

    I was hoping I'd be really productive during my stay, I brought books and uni work and I've hardly looked at any of it. Mostly because I have felt so ill but maybe a little bit of overstimulation and a bit of disinclination on my part. I really should be a bit harder on myself.

    My boss is based in this building so I'm going to go and see her. I'd like to find out what I'm scheduled to do on Monday if possible, she might be able to find out. 

    I'm getting quite a lot of sensory input today, the lady in the bed diagonal from me is having issues with her drip and it keeps sounding off alarms which is really stressing. There's also a lot of day patients who are using our bays toilet so heavy traffic going past my bed which I'm finding quite disturbing. One lady had a man with her and he hovered around the bed spaces while he waited which made me feel quite exposed. I was having chest pains so I'm on a cardiac monitor and the wires are making my clothes not sit properly so it wasn't nice. The nurse noticed him and kicked him out eventually, right before the doctor came in to check on my lead placement so good timing really. 

    I'm waiting to see my consultant, he's really nice and understanding. I miss my husband but he's been really busy at work. He has called every night for a short chat, I can't do much more than that. 

    hope everyone is well and enjoying the snow

Reply
  • Another day in hospital, I'm due to go home tomorrow.

    Not felt as sick today so that's good. I've to get 9 bags of this infusion and I've had 7 so I'm counting down to completing the course (last bag should go up at midnight).

    I was hoping I'd be really productive during my stay, I brought books and uni work and I've hardly looked at any of it. Mostly because I have felt so ill but maybe a little bit of overstimulation and a bit of disinclination on my part. I really should be a bit harder on myself.

    My boss is based in this building so I'm going to go and see her. I'd like to find out what I'm scheduled to do on Monday if possible, she might be able to find out. 

    I'm getting quite a lot of sensory input today, the lady in the bed diagonal from me is having issues with her drip and it keeps sounding off alarms which is really stressing. There's also a lot of day patients who are using our bays toilet so heavy traffic going past my bed which I'm finding quite disturbing. One lady had a man with her and he hovered around the bed spaces while he waited which made me feel quite exposed. I was having chest pains so I'm on a cardiac monitor and the wires are making my clothes not sit properly so it wasn't nice. The nurse noticed him and kicked him out eventually, right before the doctor came in to check on my lead placement so good timing really. 

    I'm waiting to see my consultant, he's really nice and understanding. I miss my husband but he's been really busy at work. He has called every night for a short chat, I can't do much more than that. 

    hope everyone is well and enjoying the snow

Children
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