Working and stress

Hello, I am awaiting an assessment, which is due on the 20th April. I have been waiting 19 months and in that time have convinced myself, with reading everything I can, that I do have autism. I am getting very stressed and anxious leading up to the appointment Incase it’s not what I thought. This is causing me to have emotional breakdowns at work. What’s not helping is the current changing environment, I work as a receptionist in a GP surgery so things are stressed. I feel I cannot cope with the changes at work, working at different sites, working with different people and the job it’s self not being the same. I’ve signed myself off but feel so guilty and work are asking me how they can help but I cannot explain it properly. What if I’m not autistic? why can’t I cope? I feel so guilt because I usually step up to challenges but there is no end and I have little stamina. I know this is rambly but does this sound familiar to anyone. I just hate feeling alone - any advice would be gratefully received.

  • Hi, this is very familiar to me. A few years ago I was in the position of worrying about whether to  have a formal assessment and being designated "not autistic" as it would leave me in limbo - feeling that I really didn't fit in anywhere. 

    After speaking to people on this site, seeing a GP and doing a lot of research, I decided that I would actually be happier not having an assessment, but many others find it really helpful. I wouldn't get any support if formally diagnosed, as I usually cope ok: however the GP I saw, a specialist in mental health with knowledge of autism, asked me to do the AQ50 test and send him my results (highly likely autistic) which he put in my notes for future reference, and assured me I could be referred at a later date if I felt I couldn't cope.

    I was having some problems at work at the time and had been off work for a few days with stress. I emailed management and explained how it was very likely that my absence had been due to stress caused by AS. They were luckily very understanding and thanked me for being so candid. We had a chat and they agreed to me reducing my hours and made me feel valued.

    Since then things have improved a lot for me. People on this site were so accepting and I identified so much with what they talked about. I've always felt on the same "wavelength" as my husband (also very likely autistic) but have found it difficult to really identify with others, so this made me realise we weren't the only ones like us.

    I do understand how change that is not under your control is so stressful. I need to work in the same place, feel that I am in control of my own area of work and follow certain procedures to feel happy at work and get stressed when unexpected problems arise. I would recommend you email your management to explain how things make you feel and how they might be able to support you. They have a responsibility to meet your needs regarding your physical and mental health & welfare, autistic or not.

  • You are absolutely entitled to look after yourself, regardless of the situation or cause of struggles.

    Don't compare to anyone, or a standard you feel you should reach.

    There is no 'should', only 'is'

  • Hi ,

    Thank you for sharing with this with the community. I'm really sorry to hear that you have had such a tough time at work and are struggling to cope. You may find the following link useful, which has some information from the NAS website on coping at work:

    https://www.autism.org.uk/about/adult-life/work.aspx

    You may like to contact our Autism Helpline team who can provide you with information and advice . You can contact the team via telephone on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor. Alternatively, should you prefer to send a message, you can do so via their webform:

    https://www.autism.org.uk/services/helplines/main/questions.aspx

    I hope this is helpful,

    ChloeMod.