Hi My little boy is just 5 years old . He has recently been diagnosed with austism mainly because of this speech and understanding which is very delayed . He also changes his obsessions the current one s dinosaurs . What happens after diagnosis ?? the pedeatrician said he wld write to school , is there anything else i should be doing . anyone else have a child with similar problems ?? xx thank u
Hi stacey 1471
Am new to group and was reading through your post. I work closely with a young child with ASD and thus sleep issues and am very interested in what you do to help you son get to sleep so I could pass this on to the parents. Many thanks
hi.mine with Asd is now 13,he had delayed speech and lanage and comprehension of langage.With a lot of patience and read lots of books with them they do pick up.mine is inmainstream school he is socially young for his age,but his langage and understanding is good.you do have to put input yourselves but it is worth it.
Hi
Ive only been on here a few times myself, but have a son who in may was diagnoised
With Autisum high functioning. He is also 5, he'll be 6 in october. He has just started year 1 in mainstream school.
Following our diagnosis i was also quite lost, im starting to find my way now, our dr gave us supoort groups etc, one of which i am doing a course with. And the support groups also this fourm just give u people to talk to that is or has been thro same thing.
We also got a regular play theripist thro a team called 'jigsaw' ( probley different in your area) she comes once a week and encourages positive play, and i also have a 20 month old son and they fight all the time :-( my eldest does n't understand hes a baby and has no empthy for hitting him etc.
My son also is delayed in speech and language, he also speaks totally out of context, and has a lot of echolia. he also has a stutter which he deals with by leaving the room work out what he wants to say then he retns and gets it all out.
His stutter is worse when excited or upset.
A bit like what crystal above said my son wants to talk on his terms, do everything on hi terms, and when u try to explain or just talk he cannot handle it, he is the centre of his universe! he cannot have a 2 way flowing conversation.
He 2 has a long lasting obsession 'starwars' bless him.
School....... Where to start.
Before he started reception before diagnosis we kn some thing was up and so did his preschool, as he doesnt want to be with other children.
The same has continued thro school and the same now at begg of year 1, he will say hello if prompted (almost robitic) to orher children and had become with help from teachers quite happy to do group tasks in class. But before school, in the play ground and after school he just wondere's around on his own 'getting breeze'
To be honest i get upset but i shouldn't he is still young enough to get away with spinning on own etc but he is happy, he loves school, cant wait to go everyday, is a teachers pet and wants to be alone at play time!!
I am just being realistic and keeping a local autistic school in mind, incase he continues to want to be alone etc but the gap between him and peers becomes so big he is alomst a target. Then i wont hesitte to move him.
He likes to know whats happening next, we use a visual timetable at home.
His emotions are way off the mark, he gets soooooo emotional absolute breakdowns when i tell him off. And he has meltdowns but they are not violent ( they was at about 4 years old for about 6 months punching pushing etc but they stoped) its just v emotional and loud and takes a while to calm down.
One thing ill mention dont want to ramble to much lol is bed time his 'brain' does complete overtime and he worries about everything, topics at school , easter story, spiders in other countries etc also films he thinks about beasts, but mainly he just cannot switch off at night i now have a technique i use from his play theripist that sends him off its taken 3 months but its working and he falls asleep.
Hope ive helped and not just rambled. I just kn that he see's thing differently to te rest of us and i try to undertand and make adjustments to reduce his anxity.
But get support its a must for you all .
Stacey xxx
hi jojo - my son was 3 months short of his 3rd birthday when he was diagnosed. The social side is difficult for anyone on the spectrum. Remember it is a spectrum so autism will affect your child but to what degree and in what ways? This will only tell with time, altho the diagnosis, if detailed, will help. So will the appropriate educational environment. My son was never particularly bothered about other children when he was a child. He preferred adults, poss because they understood his use of language better, so he would go to them for what he wanted. He would take a liking to certain adults but we were never sure why. As he couldn't see the full picture of any situation, he would be basing his likes and dislikes on an incomplete understanding of the person or situation. There again, there were people he didn't like and I could understand that! As he's grown up he understands more, has a larger vocabulary and takes more of an interest in people. He has always had problems following sequences. He lacks social skills but unlike people with aspergers who are more aware, he doesn't get depressed as I don't think he has insight to that degree. He's a stickler for some things being a certain way whilst other things don't bother him at all. He still gets attached in his own way to certain people but it's on his terms! He has a poor understanding of families and what it means to be part of one, but on the other hand some people are important to him. Basically he'd like us all to do what he wanted all the time. Unless upset he's a happy personality, with his own interests who's building up an understanding of the world he lives in and making progress. I'm proud of how far he's come and he continues to develop. Your child will also develop and mature so don't take what I'm saying as a template. Just like any child, no 2 are the same.
how old was your son when he was diagnosed?? we havent applyed for a sen statement as yet but now we have a diagnosis i will talk to the school about this. my son talkssimple sentances but the rest is babble or he says things out of context or that dont make sense ! he doesnt have temper tantrums ( no more then a usual child ) and can be quite easily distracted , he loves school and they dont struggle with him there . i just am worried about how he will cope with the social side of growing up , he loves other children but they tend to not be to bothered about him as he doesnt make sense or cant discuss and relate to the things they are interested in ! how is your son now he is an adult ? sorry for all the personal questions . thank you
hi Jojo - as your son has a diagnosis, I would expect him to be allocated a social worker. The sen statement should say what educational provision/adjustments/support your child needs. Is there a school for children with autism in your locality or is he at mainstream school? There's lots of info on the nas site which you can access to give you a comprehensive understanding about what happens following diagnosis. My son started talking when he was 5. He understood simple commands prior to that. He always liked numbers. He could write single words before he could talk. In many ways he was and still is practical. I still keep sentences short and simple, altho his vocabulary is much larger. He was obsessed with Thomas the tank engine, as are most children with autism. He's an adult now and has always been a "collector".
