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Advice needed please!

nuttywench

Just need some advice really.

My youngest son who is 7 has just had a full  OT assessment which shows he covers all aspects of sensory processing disorder and dyspraxia. His speech and language therapist has sent his details off for a diagnosis with an autism panel. They think he fit's somewhere on the spectrum.
My son has a lot of issues, he screams, tantrums, gets aggressive. He has social and communication difficulties and after school alot of this behaviour starts and when we are going out.

The OT which I am paying for because we can't get it on the NHS where we live is making me feel like its all my fault, she said he has learned these behaviours to deal with his issues and that he is manipulating me and she told me i need to grow a pair of balls and give him tough love.

What she doesn't see is me being constant and not giving in and when I tell her the smells, noise etc are still setting his behaviours off she just keeps saying BEHAVIOUR and that I need to give "tough love". 

And when I said after the sessions he is like this too she says the same thing! Even though in her words "we create the monster before it gets better".

I really don't know what to think!

Parents

  • hi - my son, who's now an adult, recently had an assess't by an OT who specialises in autism.  Whilst we were aware of his issues, we were pleased that she identified the same things and came up with a number of suggestions to help him when he gets stressed.  I'm not at all sure you've got the right OT.  If you haven't you could be spending a lot of money and your family having loads of extra stress for no purpose.  If you feel unsure, then you're probably right.  In the past I've perservered with staff of all descriptions who were qualified in different ways to try and make things work.  Crucially, they were not autism-specific or even trained in depth in autism.  Although there were many good intentions from them, they ultimately were not equipped to provide what my son needed.  We sometimes learn the hard way, unfortunately.

Reply

  • hi - my son, who's now an adult, recently had an assess't by an OT who specialises in autism.  Whilst we were aware of his issues, we were pleased that she identified the same things and came up with a number of suggestions to help him when he gets stressed.  I'm not at all sure you've got the right OT.  If you haven't you could be spending a lot of money and your family having loads of extra stress for no purpose.  If you feel unsure, then you're probably right.  In the past I've perservered with staff of all descriptions who were qualified in different ways to try and make things work.  Crucially, they were not autism-specific or even trained in depth in autism.  Although there were many good intentions from them, they ultimately were not equipped to provide what my son needed.  We sometimes learn the hard way, unfortunately.

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