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Are you autistic - The Inquest

Trainspotter

The channel four programme had a pretty good go at showing autism, more specifically what used to be referred to as Aspergers.

But where were the more mature autistic people. Those over 45? Those over 60? And I know I may have dropped off a bit during the programme so will have to watch it again,but there didn't seem to be a 'control' for the tasks. Just saying they had problems when presented with change. I would like to have seen how a neurotypical  behaved and coped in these circumstances. To me, as someone autistic, I still don't know how a NT picks up when interrupted, when I take ten or 15 minutes to get my thoughts focused again.

There also was an over representation of females although I know part of the raisin debtor was to show women are under represented in diagnosis. The speed dating bit I didn't get at all apart from to show that autistic people don't have green skin.I can make a good job of pretending I'm something I'm not for ten minutes if I keep to a script but sooner or later the script will vary to another play for which I haven't learned the lines and then the problems will start..

Yes, generally we do look like everyone else. However until people are not judged on appearance and superficial traits we will always have a problem in society. A society that supposedly welcomes truthfulness and open speech is greatly phased by someone autistic who tells it as it is.  And until this can be addressed we will always have a problem in the NT mind.

Parents

  • One thing it touched on that went outside of the usual subjects like routine, social awkwardness e.t.c. was the whole sensory area. I'm not too bad with social situations, a little "weird", a bit too observational at times, stubborn and sarcastic, or so I've been told but my senses are the main thing I struggle with. A lot of the ASD people I speak to at my group suffer immensely.

    They covered the sensory aspect but they presented it as an advantage imo. Most of my adolescence and all of my adult life I thought I was going mad. I had a second diagnosis a few months ago which was arranged by my Autism support worker and my psychiatrist which also diagnosed synaesthesia as part of my ASD. My Autism worker is pretty knowledgable and had read Olga Bogdashina's books about the sensory experiences of ASD sufferers, which I myself have since read. Synaesthesia is becoming more accepted as part of some ASD peoples experience. Since I was about 12 I started to realise that the way I saw and felt the world was far different to the people around me. Seeing sound, hearing colours, bits of information playing out in my main stream of conciousness. I get feelings from smelling certain smells, from the calming, fearful, or even erotic. How do you tell anyone the smell of coffee is f******g erotic. Ticking clocks ticking in your head for hours after you've sat under them for a while. A 5 second piece of music looping over and over in your head for hours. I feel so schmaltzy and so overdramatic saying this but my senses can be so beautiful at times but at other times they are like complete torture.

    I think that the sensory aspect of ASD needs to be presented more to the general public. It's driven me to the edge of sanity. It drove me to alcohol and drug addiction. If I just had any indication it was ASD, I wouldn't have hidden it all my life. I thought I was Schizophrenic. I was waiting for the day where I went to bed as me and woke up as Captain America. I got my diagnosis. I'm learning to manage. I can laugh about a lot of it. I just think that they need to present the sensory aspect as a major part of the condition. There could be some 12 year old kid out there who thinks they are going mad, just like I was. They could be saved a pretty rocky ride. 

    [Edited by Moderator]

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  • One thing it touched on that went outside of the usual subjects like routine, social awkwardness e.t.c. was the whole sensory area. I'm not too bad with social situations, a little "weird", a bit too observational at times, stubborn and sarcastic, or so I've been told but my senses are the main thing I struggle with. A lot of the ASD people I speak to at my group suffer immensely.

    They covered the sensory aspect but they presented it as an advantage imo. Most of my adolescence and all of my adult life I thought I was going mad. I had a second diagnosis a few months ago which was arranged by my Autism support worker and my psychiatrist which also diagnosed synaesthesia as part of my ASD. My Autism worker is pretty knowledgable and had read Olga Bogdashina's books about the sensory experiences of ASD sufferers, which I myself have since read. Synaesthesia is becoming more accepted as part of some ASD peoples experience. Since I was about 12 I started to realise that the way I saw and felt the world was far different to the people around me. Seeing sound, hearing colours, bits of information playing out in my main stream of conciousness. I get feelings from smelling certain smells, from the calming, fearful, or even erotic. How do you tell anyone the smell of coffee is f******g erotic. Ticking clocks ticking in your head for hours after you've sat under them for a while. A 5 second piece of music looping over and over in your head for hours. I feel so schmaltzy and so overdramatic saying this but my senses can be so beautiful at times but at other times they are like complete torture.

    I think that the sensory aspect of ASD needs to be presented more to the general public. It's driven me to the edge of sanity. It drove me to alcohol and drug addiction. If I just had any indication it was ASD, I wouldn't have hidden it all my life. I thought I was Schizophrenic. I was waiting for the day where I went to bed as me and woke up as Captain America. I got my diagnosis. I'm learning to manage. I can laugh about a lot of it. I just think that they need to present the sensory aspect as a major part of the condition. There could be some 12 year old kid out there who thinks they are going mad, just like I was. They could be saved a pretty rocky ride. 

    [Edited by Moderator]

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