refusing medication - what are your rights?

desperatebrother said:

[quote][/quote]

Patient confidentiality is one thing, but as family you have evidently reason to be concerned. What on earth is he being treated for that medication with such severe reactions is merited?

You need to consult Citzen's Advice to find out if there are any legal measures that can be taken on his behalf.

If he has not been sectioned under what terms are these medical individuals acting? Even with his consent. The side effects seem very damaging. There must be something they are treating that they think justifies such extreme measures.

Doesn't sound like autism. Are they treating him for Schizophrenia or a bipolar disorder? Are they taking account of the effects of some medications on people with autism?

The moderators need to come in on this I think.

Well YES they do seem to be treating him as schizophrenic (much to his disgust)

I am not an expert (yet) but aspergers/autism symptoms suit my brothers personality and behaviour down to a "T" and the family has always been comfortable with that diagnosis

The best way of describing what has happened to him is to tell you the abridged story.

His bed needed changing due to damaged springs. This meant he could not sleep in it. His answer was to sleep on his sofa (even more uncomfortable) so he was hardly getting any sleep. He needs his sleep more than most folk.

Lack of sleep means that he misplaces things - in this story his coach tickets for a planned trip to my parents. He got confused and rang his helpline number. trouble was it was approaching a bank holiday weekend and it was a mental health nurse who answered. This nurse suggested he go in to hospital which he did (on the bus!!!!)

Arrived in hospital - placed on drugs - down hill from there

He has been in since easter - and yes I think they nearly killed him

Same thing happened at christmas - they discharged him with a catheter in - poor chap is totally incapable of "managing" a catheter - eventually some urologist "hit the roof" removed catheter and insisted medication was stopped

As to why they put him on drugs - who knows.....

maybe it is the easy option - part of his condition results in behaviour that can be difficult to fully understand (especially if you are in a hurry, or not an expert)

...maybe they felt he was schizophrenic

However we as his family do not

He is unique, caring, extremely gentle BUT frustrating - tell him not to do something and...... - you know the rest

Drug names I cannot remember but all the top three nasty anti phsyc

I can get the names if it helps, but the one they keep going back to does nothing to help him mentally (that we can see - and since xmas we have being seeing him weekly) But they do screw his general health up

Social services profess to have no interest in what they call "health issues" insisting on leaving that area to the medical profession

Unfortunately that at the moment is a consultant who...

Has admited that my bro doesnt suit any of the meds so far tried - yet keeps re- prescribing when the family`s back is turned

ignores nursing staff and fellow professional advice

ignores my brother and according to him hasnt even tried to understand him

I should point out that up until very recently my parents have (at their insistence) been the main point of contact. They therefore know more details than me. However I am determined to be there for him and cant wait for him to be closer. At the moment he is 200miles away from my parents and over 100 from me. I/we begin to suspect that "loneliness" is a significant factor. All of his current carer/social workers seem increasinglt too busy to carry on the care and attention he used to recieve in the early days of living independantly. In the meanwhile my mid 70`s parents are "clocking up" the miles attending endless meetings where the endless circle continues to pointlessly revolve

I have to say guys this has been stressing me out badly and then I found this site, thank you all I feel a little light is showing at the end of the tunnel

my mum and dad is going though the same thing with my brother is so very stressful for them they are at their ends wits it's very unlucky for them to have two kids who are autistic my dad likes to be around me but hates being around my brother he swears and shuts at them your lucky your bother is a nice person my brother doesn't act very nice.

desperatebrother said:

[quote][/quote]

Patient confidentiality is one thing, but as family you have evidently reason to be concerned. What on earth is he being treated for that medication with such severe reactions is merited?

You need to consult Citzen's Advice to find out if there are any legal measures that can be taken on his behalf.

If he has not been sectioned under what terms are these medical individuals acting? Even with his consent. The side effects seem very damaging. There must be something they are treating that they think justifies such extreme measures.

Doesn't sound like autism. Are they treating him for Schizophrenia or a bipolar disorder? Are they taking account of the effects of some medications on people with autism?

The moderators need to come in on this I think.

Well YES they do seem to be treating him as schizophrenic (much to his disgust)

I am not an expert (yet) but aspergers/autism symptoms suit my brothers personality and behaviour down to a "T" and the family has always been comfortable with that diagnosis

The best way of describing what has happened to him is to tell you the abridged story.

His bed needed changing due to damaged springs. This meant he could not sleep in it. His answer was to sleep on his sofa (even more uncomfortable) so he was hardly getting any sleep. He needs his sleep more than most folk.

Lack of sleep means that he misplaces things - in this story his coach tickets for a planned trip to my parents. He got confused and rang his helpline number. trouble was it was approaching a bank holiday weekend and it was a mental health nurse who answered. This nurse suggested he go in to hospital which he did (on the bus!!!!)

Arrived in hospital - placed on drugs - down hill from there

He has been in since easter - and yes I think they nearly killed him

Same thing happened at christmas - they discharged him with a catheter in - poor chap is totally incapable of "managing" a catheter - eventually some urologist "hit the roof" removed catheter and insisted medication was stopped

As to why they put him on drugs - who knows.....

maybe it is the easy option - part of his condition results in behaviour that can be difficult to fully understand (especially if you are in a hurry, or not an expert)

...maybe they felt he was schizophrenic

However we as his family do not

He is unique, caring, extremely gentle BUT frustrating - tell him not to do something and...... - you know the rest

Drug names I cannot remember but all the top three nasty anti phsyc

I can get the names if it helps, but the one they keep going back to does nothing to help him mentally (that we can see - and since xmas we have being seeing him weekly) But they do screw his general health up

Social services profess to have no interest in what they call "health issues" insisting on leaving that area to the medical profession

Unfortunately that at the moment is a consultant who...

Has admited that my bro doesnt suit any of the meds so far tried - yet keeps re- prescribing when the family`s back is turned

ignores nursing staff and fellow professional advice

ignores my brother and according to him hasnt even tried to understand him

I should point out that up until very recently my parents have (at their insistence) been the main point of contact. They therefore know more details than me. However I am determined to be there for him and cant wait for him to be closer. At the moment he is 200miles away from my parents and over 100 from me. I/we begin to suspect that "loneliness" is a significant factor. All of his current carer/social workers seem increasinglt too busy to carry on the care and attention he used to recieve in the early days of living independantly. In the meanwhile my mid 70`s parents are "clocking up" the miles attending endless meetings where the endless circle continues to pointlessly revolve

I have to say guys this has been stressing me out badly and then I found this site, thank you all I feel a little light is showing at the end of the tunnel

my mum and dad is going though the same thing with my brother is so very stressful for them they are at their ends wits it's very unlucky for them to have two kids who are autistic my dad likes to be around me but hates being around my brother he swears and shuts at them your lucky your bother is a nice person my brother doesn't act very nice.