Autism and the Government

hi all i thought i would ask what everyone else was thinking on this subject to me the government dont really care from what i gather and i think its about time that they made people more aware of autism its like people dont care enough and its wrong i for one didnt know that what my little girl was showing was traits of autism if it wasnt for my sister and brother in law pointing it out we didnt put two and two together we just thought she was going through funny stages as it were because we didnt know what autism was yes we had heard of it obviously but we didnt know of any signs or that to look out for and i think people shoul be made aware of these signs for all our childrens sake so we can try and get early detection of this i suppose i,m just a bit angry that i didnt know our own child was showing signs of this condition and so many aswell yes the no talking or communicating we noticed but we put it down to she was just a late learner how sad is this? i think the government could supply classes or something so people can learn of the signs and traits maybe i,m wrong and maybe i,m just having a bad day of it today and need to let off some steam but it does make me angry as we had no idea that what she was showing was autism and we didnt know anyway i,ve finished ranting now sorry guys

skye xxxx

Parents
  • I had many classic symptoms of autism as a child. I was quiet, lived in my own world, couldn't interact with other children, was scolded for being too 'mature', I used to bite others at the playgroup and I would 'act out' at any change. i.e. when I went from nursery to reception, I screamed, kicked, bit, threw up and was generally traumatised, the school was forced to intergrate me into a full school day slowly over a month or so, they had to intergrate me into a school routine again in year 5 after the Juniors school was turned into a primary. Each time I was dealt with by the deputy head who was in charge of SEN.

    If I had been diagnosed in primary, I wouldn't have had to suffer the depression, anxiety and the fear of suicidal thoughts throughout high school, all of which my high school passed off as a side effect of my parents divorce the year before I enrolled because my primary hadn't informed them of my 'issues'. By this stage I'd learned to hide my emotions, thoughts and feelings so well even my own parents didn't know how stressed and depressed I'd become. It took a breakdown over Maths AS homework (trying to complete a months worth of revision that night because I felt it had to be done) in year 11 for me to finally get reffered to CAHMs, who then diagnosed me with Aspergers Syndrome.

    There is no awarness of the varieties of autism. I didn't know my high school even had an Autistic Unit until after the diagnosis. All the 'normal' kids are kept seperate from the autistic kids and none have any idea of what autism is beyond 'spazz'.

    I will honestly say that I'd rather have been diagnosed in primary than growing up thinking I was wrong and that it was solely my fault. If people were made aware of autism through other ways, like leaflets being given out at assemblys in schools for parents to read, rather than documentaries on TV which mostly presents the most extreme behaviours, then maybe more kids can get the help and support they need.

Reply
  • I had many classic symptoms of autism as a child. I was quiet, lived in my own world, couldn't interact with other children, was scolded for being too 'mature', I used to bite others at the playgroup and I would 'act out' at any change. i.e. when I went from nursery to reception, I screamed, kicked, bit, threw up and was generally traumatised, the school was forced to intergrate me into a full school day slowly over a month or so, they had to intergrate me into a school routine again in year 5 after the Juniors school was turned into a primary. Each time I was dealt with by the deputy head who was in charge of SEN.

    If I had been diagnosed in primary, I wouldn't have had to suffer the depression, anxiety and the fear of suicidal thoughts throughout high school, all of which my high school passed off as a side effect of my parents divorce the year before I enrolled because my primary hadn't informed them of my 'issues'. By this stage I'd learned to hide my emotions, thoughts and feelings so well even my own parents didn't know how stressed and depressed I'd become. It took a breakdown over Maths AS homework (trying to complete a months worth of revision that night because I felt it had to be done) in year 11 for me to finally get reffered to CAHMs, who then diagnosed me with Aspergers Syndrome.

    There is no awarness of the varieties of autism. I didn't know my high school even had an Autistic Unit until after the diagnosis. All the 'normal' kids are kept seperate from the autistic kids and none have any idea of what autism is beyond 'spazz'.

    I will honestly say that I'd rather have been diagnosed in primary than growing up thinking I was wrong and that it was solely my fault. If people were made aware of autism through other ways, like leaflets being given out at assemblys in schools for parents to read, rather than documentaries on TV which mostly presents the most extreme behaviours, then maybe more kids can get the help and support they need.

Children
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