i am sure im audhd but im alone in this

hello i believe im audhd , 3 years ago i quit drinking, im 40 next year. i had been drinking heavily since i was 14/15 years old. i always knew i was adhd but now im sure theres more. i have autistic traits also. i dont know what i want or need so often in a day i get so frustrated. im finding myself more sensitive to things ie too much going on around me, two seperate conversations or two sets of music playing, loud in general. i think i find some balance between my walking bein in nature making hip hop beats and gaming. i have been researching alot, this internal tug of war or chemical tug of war ive seen it a few times and it just rings home with me... there is lots more i could go on and on, i cant afford to go private and the nhs just want to put you on anti depressants and or a waiting list, they dont care. i have a son and my relationship with him is being affected, his mother has it out for me and wont explain neurodivergancies to him for my sake. i find it so difficult to communicate i always feel i cant get out what im looking to say then i feel terrible afterwards. i find that in conversations if i havent got the response i wanted i add little white lies, i cant understand why i do this, i hate big lies and i cant stand wrong doers, i feel like i have so much about me people dont understand, i lived alone for 10 years so no one but my kids seen my home life. i find myself sittin in front of frequencies and meditation music for long periods of time when frustrated or burnt out. theres more to me but i just need to be reassured this is what im going through, cheers

Parents
  • You sound really low and stuck, but you aren’t on your own as many people here are autistic, have ADHD and are living on their own. I was diagnosed with ASD nearly two years ago, and being here has really helped me feel accepted and helped me to understand more about myself and other people like me. I really hope that you will feel accepted for who you are here too. 

    If the online autism and ADHD tests indicate that you should consider seeking referral, and if you want an assessment to help you make more sense of how you function and why you behave in certain ways, seeing your GP to ask for a referral would be best, even if you end up going privately. 

    NHS Adult Autism diagnosis clinics in Northern Ireland are active, but there are no commissioned ADHD services. This means that it is up to each health trust to arrange services. Unfortunately, Adult ADHD services have been suspended in the South Eastern and Belfast areas, and possibly in other areas. I have been on a waiting list for an ADHD assessment for nearly two years and recently I was informed that adult ADHD assessments are not likely to happen in my lifetime, even though they are retaining my name on the waiting list. The reason is lack of funds. 

    Even if you don’t feel able to see your GP right now, it might help to write a list of the things that cause you difficulty, such as the things highlighted in the online tests. Then you could just hand your GP the information rather than telling them verbally. I do think that your GP should refer you for an autism assessment if the online tests show you meet the criteria. 

  • recently I was informed that adult ADHD assessments are not likely to happen in my lifetime

    It's the same now in Scotland, unless someone has other problems such as a learning disability.

Reply Children
  • I think you’re correct and it won’t help you as you say 

    There’s your diagnosis now go away you’re discharged

  • I’m sorry, it’s not easy. Hopefully, validation would help you. It helps many people, but not all, so if you are considering paying for a private assessment, it would be a big decision to make.

    I made a list of all the potential pros and cons of a positive diagnosis and the pros and cons of ending up with no diagnosis. At the end of the day, I decided that I might always regret never knowing if I didn’t get a diagnosis. 

    At the moment, I’m not considering a private ADHD assessment. I can live without a diagnosis, and there is no assurance that medication will be offered, or that it would help me.

    Maybe if you get referred for an autism assessment, you would be better placed to make a decision over paying for a private ASD assessment, or waiting for an NHS assessment.

    If you feel the validation of an ADHD assessment is also a pressing need, maybe better to try to get referred on the NHS, even if services are suspended. At least there’s a chance that services will recommence, and it won’t cost you while you consider things.

  • see this is what is scaring me also, all im payin for private is validation, i just wonder is it worth the money just to prove to people i am this, i dont think i could afford medication if i wanted it, it just all seems like its not going to help me the way id hope. 

  • It’s not good. I had been hoping that the government would consider the impact on employment that lack of diagnosis is causing, not to mention the impact on individuals’ lives and mental health, but nothing is happening on that front yet. It’s a false economy to cut ADHD services. 

  • That’s astronomical for the medication it really is.

    I'm audhd I have to live with it somehow 

  • Glad you have an appointment. Good on you!

    I felt much the same as you two years ago, and it’s why I initially sought an autism assessment. The GP referred me but the waiting list was too long, so I found a reputable private clinic in which the autism assessments were completed in accordance with NICE guidelines.

    After diagnosis, the private clinic arranged a few follow up counselling and information sessions, and they referred me on to NHS Adult Autism Services for an assessment of my needs. I had to wait nearly a year for the first appointment but I didn’t mind as I had a lot of information and resources by that stage anyway. Diagnosis was a huge relief. I can’t really convey here what it meant, but it helped get rid of a lot of life time guilt over my behaviours and provided validation. 

  • Yes, I’m not sure how much a psychiatrist charges to write a prescription each time, but the medication itself is expensive. There are a few different types of medication and people are on different dosages. I’ve heard of people paying £140 - £270 per month for medication, but it could cost a bit less or more. 

  • im guessing private perscriptions are expensive?

  • i know, i dont want medication, i want to be certain of what is wrong with me. and proof of it. i called the gp and have an appointment on tues

  • I mean, GPs won’t accept a private prescription and issue an NHS prescription. 

  • It’s dreadful, and all the social media nonsense about ADHD and benefits isn’t helping.

    I would consider a private diagnosis for ADHD, but if medication is prescribed, GPs won’t accept private prescriptions on an ongoing basis unless the person is examined by a psychiatrist for each new prescription, yet private ADHD clinics issue ongoing private prescriptions without seeing the patient.