Trying to get support autism from nhs following recent diagnosis

Used the template letter on this site to send to my doctors to essentially request a review of needs post formal  autism diagnosis last month. 

Drs called today, saying they know nothing about such things are it needs to go back to the assessment company (right to chose nhs) to action. But im already discharged from them as assessment has been done and they specifically put in report discharge back to gp for further action. 

Feel like im being fobbed off and nothing will be provided, but feel like i need some support now if im ever going to get back into a job again etc. Been medically retired for 6 months which has meant ive been even more socially isolated than usual. 

Felt bit low since diagnosis, relief but its like rest of the world doesnt want me to react and adjust to what needs i now know i have. Wife is supportive to a point but shes also scared of me changing so im trying to keep it low key around her which is hard when the person you love the most doesnt quite understand it the way you hoped. 

Hope everyones start of the week is going alright,

Parents
  • Hi NinjaPanda, I really do know what you are going through, I was diagnosed 8 weeks ago at the age of 66. I have really struggled with the fact that there doesn't seem to be much if any help out there for the mental anguish of post diagnosis. I have been so angry that I have just about pushed everyone away from me, even telling my long suffering husband that I would rather he just left me alone permanently. I'm happy to say that he is still here and I do actually need him. I don't know if this is a common response to late diagnosis but I am starting to see a light at the end of the tunnel. I really do hope that you start feeling a little bit better soon, I know we will get through this, I wish that we could all just physically get together for a group hug, if group hugs are your thing as I know even as autistic we are all different in our wants and needs. ((( Gentle Hugs))) Anyway

Reply
  • Hi NinjaPanda, I really do know what you are going through, I was diagnosed 8 weeks ago at the age of 66. I have really struggled with the fact that there doesn't seem to be much if any help out there for the mental anguish of post diagnosis. I have been so angry that I have just about pushed everyone away from me, even telling my long suffering husband that I would rather he just left me alone permanently. I'm happy to say that he is still here and I do actually need him. I don't know if this is a common response to late diagnosis but I am starting to see a light at the end of the tunnel. I really do hope that you start feeling a little bit better soon, I know we will get through this, I wish that we could all just physically get together for a group hug, if group hugs are your thing as I know even as autistic we are all different in our wants and needs. ((( Gentle Hugs))) Anyway

Children
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