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Trying to get support autism from nhs following recent diagnosis

NinjaPanda85

Used the template letter on this site to send to my doctors to essentially request a review of needs post formal  autism diagnosis last month. 

Drs called today, saying they know nothing about such things are it needs to go back to the assessment company (right to chose nhs) to action. But im already discharged from them as assessment has been done and they specifically put in report discharge back to gp for further action. 

Feel like im being fobbed off and nothing will be provided, but feel like i need some support now if im ever going to get back into a job again etc. Been medically retired for 6 months which has meant ive been even more socially isolated than usual. 

Felt bit low since diagnosis, relief but its like rest of the world doesnt want me to react and adjust to what needs i now know i have. Wife is supportive to a point but shes also scared of me changing so im trying to keep it low key around her which is hard when the person you love the most doesnt quite understand it the way you hoped. 

Hope everyones start of the week is going alright,

Parents

  • Sadly your experience isn't uncommon, when I was diagnosed on the NHS, I was discharged and told I'd managed for 50 years so I could go on managing. I found most of my help and support from books and on here.

    Your wife has no need to fear, you're not changing, you're still the person you were pre diagnosis, just with a few more answers to why you feel the way you do.

    Are there any centres to help people who are unemployed as they would probably know far more about what helps available than the GP, I'm finding GP's seem to be being treated as the gate keepers to the gate keepers and nobodies telling them anything. |They've gone from being a respected profession to being prescription writers and gate keepers to services who treat them and thier patients like they're a nuisance

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  • Sadly your experience isn't uncommon, when I was diagnosed on the NHS, I was discharged and told I'd managed for 50 years so I could go on managing. I found most of my help and support from books and on here.

    Your wife has no need to fear, you're not changing, you're still the person you were pre diagnosis, just with a few more answers to why you feel the way you do.

    Are there any centres to help people who are unemployed as they would probably know far more about what helps available than the GP, I'm finding GP's seem to be being treated as the gate keepers to the gate keepers and nobodies telling them anything. |They've gone from being a respected profession to being prescription writers and gate keepers to services who treat them and thier patients like they're a nuisance

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