Does anyone here have gastric problems? (Warning NSFW)

I can't go to the bathroom unless I take a laxative. I have servere diverticulitis.

The hospital said it's inoperable, so I just have to learn to live with it. I used to drink a litre of prune juice to flush. The active ingredient is sorbitol. I find it very gross as the prune juice goes right through you. It's sickly to taste, but if I don't flush, I might tear my colon due to the pressure. It is already riddled with polyps. When I had the colonoscopy,  she said she has only seen that severity in people over 90. The prescribed laxatives don't work anymore.

My left quadrant has been constantly very painful and enlarged. I have to sleep on my side to ease the pressure during the day. I bought sorbitol powder on eBay. I told my GP I take it. I usually only need half of a 10ml measure to flush. Then I needed the whole vial. Now I need two vials to flush.

They have signed me off of work due to the serverity. I got a phone call from the hosptial about my Barrett's oesophagus and my throat hernia, but nothing about my next colonoscopy. He said they sent a letter and I missed it. That's impossible.

It's getting worse exponentially. I think what I'm seeing is something called 'overflow diarrhoea'. The flush pushes out around the blockage, but dosen't solve it. I don't actually know what is causing the blockage and they did a scan. I flushed beforehand and they said my colon isn't narrowed. It's been years since my last colonoscopy, so I'll  need to book an appointent with my GP to get it looked at. At this rate, I'll be lucky to see 2027.

Sorry for dumping this on you. I just wondered if anyone else has experience anything similar.

I only eat a little once a day and find food hard to eat as I always feel full. It's like someone has put a bicycle pump up my bottom and blew up my insides like a balloon. It looks like I'm a pregnant male. I find the taste of food bad now. Cherries are too sweet etc. It's altered my taste of food. I don't feel hungry, but eat so I don't go into prolonged autophagy and waste away.

I'm undiagnosed and facing homelessness soon. I applied for a council property to be on the waiting list and told them my condition and they rejected it. Not good. Can it get any worse? Yes, I stepped on my iPad Air. Everything is collapsing around me. I can't think straight due to my colon. I can't wake up in the morning and my brain feels like it's full of toxins. The poo I can't release reenters my body.

I'm not looking forward to waking tomorrow. Luckily I don't have a partner or children, so this only affects me. Thank God!  I hope you have better luck :)

Parents
  • I’m sorry you are suffering so much with this. I hope you can get some more medical assistance- it sounds like you already have help from the gastroenterology team but what about a registered dietitian? Could you maybe ask for a referral to the dietetics department or look for one privately? I have a lot of digestive issues myself and it has really helped me to have input from a dietitian in addition to medical support. The dietitian is helping me manage my diet in a way that improves/ works with my digestive issues and has also been able to advise on some supplements and additional tests that could be helpful- it sometimes helps to have support from a range of different specialists. Just an idea in case you haven’t had any input from a dietitian yet. Hope you find a way to better manage it. 

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  • I’m sorry you are suffering so much with this. I hope you can get some more medical assistance- it sounds like you already have help from the gastroenterology team but what about a registered dietitian? Could you maybe ask for a referral to the dietetics department or look for one privately? I have a lot of digestive issues myself and it has really helped me to have input from a dietitian in addition to medical support. The dietitian is helping me manage my diet in a way that improves/ works with my digestive issues and has also been able to advise on some supplements and additional tests that could be helpful- it sometimes helps to have support from a range of different specialists. Just an idea in case you haven’t had any input from a dietitian yet. Hope you find a way to better manage it. 

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