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I would like to apologise for my threads lately (NSFW)

NAS71232

I've been very ill and I have to sleep all the time. My barrett's oesophagus has been burning 24/7. 

I got a phone call from my local hospital regarding my next endoscopy date, so I'm expecting a lettter soon.

Lately, I have gone to brush my teeth and before doing so, have found that my spit is always red. I have a metallic taste in my mouth all the time when I'm awake. 

I should book an appointment with my GP, but there isn't a point, as I might as well just wait for the endoscopy and get the update on it.

There is nothing my GP can do in the meantime. My left quadrant feels like it's going to burst when I drink water. I'm dreading the colostomy bag.

Sorry for having meltdowns on a public forum. Bad show all round.

I will just be quiet now and do what the hospital advises. I kind of know the outcome already. They said not to worry if it has turned to cancer as they can just change my treatment.

God speed to you all <3

  • NAS71232 said:
    I'm dreading the colostomy bag.

    It may help your dread to look at some people who have a colostomy bag and live a full life despite it.

    My approach in your shoes would be to inform myself of other peoples experiences and consider their tips on how they cope with it both physically and mentally.

    Instagram and YouTube will have plenty of people sharing their experiences - the most effective seem to have shifted their perception of it being a bag that they are stuck with wearing to it being something that enables them to live a fuller life than they would otherwise be able to.

    Once it is seen as a lifeline and not a burden then your relationship with it can be much more positive.

    You don't say it it is inevitable to have one so it may help to hope for the best but plan for the worst - that is my approach.

    I hope you feel better soon.

  • Firstly, I don't feel that you have anything to apologise for. This an autism forum after all, and we're here for each other through good and bad times, and everything in between.

    NAS71232 said:
    I should book an appointment with my GP, but there isn't a point, as I might as well just wait for the endoscopy and get the update on it.

    As someone who also has Barrett's, I'd encourage you to get urgent medical advice now in view of your change in symptoms, rather than just waiting for your endoscopy:

    NAS - Urgent help

  • Hi,

    I am very sorry to hear about the health problems you are having and I hope you get the help you need from the NHS. 

    Please remember to take care of yourself

    Best wishes,

    Alice Mod