• Replies 12 replies
  • Subscribers 5 subscribers
  • Views 113 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Has anyone received any NHS support for autism?

Tamarinda

I just got my autism diagnosis and am trying to get some post-diagnosis support. I sent an e-consult to my GP surgery requesting that they refer to me to a national autism service run by a London NHS trust.

They responded saying that I can't get referred to that service because I have to be referred to services within my own NHS trust, but as far as I can see there are no autism post-diagnostic services within my trust. The only thing they have is autism assessment or a service for people who are at risk of admitted to a mental health unit (which I am not).

The surgery has booked me an appointment with a mental health nurse to discuss but I feel anxious about this as I expect she will want to refer me to generic mental health services which are not targeted at autism.

I'm currently receiving counselling through NHS Talking Therapies but it is not specific for autism. It is useful just to talk about my general anxiety and worries but the therapist doesn't really understand the specific issues related to autism.

Curious to know if anyone has received any post-diagnostic support through NHS? If not, what sort of support have you found helpful?

Parents Reply
  • in reply to Tamarinda

    I'm going to add to my list of things to write to Rhun Ap Yorweth, our First Minister and AM about. I think its partly to do with our failing health trust which has been in and out of special measures for years, he's put his health minister on the board and has promised to sort it out, I wish him luck with it, as everyone has said that and they've all failed. I don't what is so intractable about it, but there must be some deep insitutional resistance because it's been going on for decades.

Children