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Has anyone received any NHS support for autism?

Tamarinda

I just got my autism diagnosis and am trying to get some post-diagnosis support. I sent an e-consult to my GP surgery requesting that they refer to me to a national autism service run by a London NHS trust.

They responded saying that I can't get referred to that service because I have to be referred to services within my own NHS trust, but as far as I can see there are no autism post-diagnostic services within my trust. The only thing they have is autism assessment or a service for people who are at risk of admitted to a mental health unit (which I am not).

The surgery has booked me an appointment with a mental health nurse to discuss but I feel anxious about this as I expect she will want to refer me to generic mental health services which are not targeted at autism.

I'm currently receiving counselling through NHS Talking Therapies but it is not specific for autism. It is useful just to talk about my general anxiety and worries but the therapist doesn't really understand the specific issues related to autism.

Curious to know if anyone has received any post-diagnostic support through NHS? If not, what sort of support have you found helpful?

Parents

  • I got a series of group sessions entitled 'being autistic' and also some 1:1 help with setting up a hospital passport. I found them very useful. They also used to run problem solving sessions and another course on autism and anxiety. However since then my trust have switched to a different care provider who despite promising they'd produce their own cover, are yet to produce any concrete support although do appear to be getting a little better. I also have since moved trust, which doesn't appear to have anything for adults. 

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  • I got a series of group sessions entitled 'being autistic' and also some 1:1 help with setting up a hospital passport. I found them very useful. They also used to run problem solving sessions and another course on autism and anxiety. However since then my trust have switched to a different care provider who despite promising they'd produce their own cover, are yet to produce any concrete support although do appear to be getting a little better. I also have since moved trust, which doesn't appear to have anything for adults. 

Children