Has anyone received any NHS support for autism?

I just got my autism diagnosis and am trying to get some post-diagnosis support. I sent an e-consult to my GP surgery requesting that they refer to me to a national autism service run by a London NHS trust.

They responded saying that I can't get referred to that service because I have to be referred to services within my own NHS trust, but as far as I can see there are no autism post-diagnostic services within my trust. The only thing they have is autism assessment or a service for people who are at risk of admitted to a mental health unit (which I am not).

The surgery has booked me an appointment with a mental health nurse to discuss but I feel anxious about this as I expect she will want to refer me to generic mental health services which are not targeted at autism.

I'm currently receiving counselling through NHS Talking Therapies but it is not specific for autism. It is useful just to talk about my general anxiety and worries but the therapist doesn't really understand the specific issues related to autism.

Curious to know if anyone has received any post-diagnostic support through NHS? If not, what sort of support have you found helpful?

Parents
  • I was diagnosed by the NHS and saw them for one follow up to discuss diagnosis. After this I was contacted by a sensory OT specialist in the NHS because I had scored 2 and over in category and that meant I would get about 12 sessions with a sensory specialist for sensory. I found that helpful. About a 8-12 months later they put my borough some support groups advice for anyone who had a recent diagnosis. This covered broad topics such as burn out how to cope and others.

  • The sensory sessions sound very useful. I wish they provided a support group for late diagnosis in my area.

Reply Children
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