ASD and OCD, How common is having both?

Hey all,

I am currently being assessed for the ASD and have been told I am to be assessed for OCD.

I was wondering how common is it to have both, as I feel I do have both, but I am slightly confused as I feel they kinda counter act against the other, giving me the feeling that I could have either, neither... or both?

I read a great quote which sums it up for me well I think.

'Autism is my Colosseum, OCD is the Lion'

Any Thoughts?

Thanks all

Parents
  • hello everyone,
    i am a 53-year-old bloke born in 1972. i was recently diagnosed with audhd (autism and adhd), along with severe ocd, generalised anxiety disorder (gad), and sensory hypersensitivity to noise. like a lot of us gen x generations, i spent my whole life knowing i was different at school but had no knowledge or map for my own brain. i ended up at a grammar school and masked my way through 31 years of hard work, basically copying and pasting other people just to fit in.
    i am joining this forum to connect with people who understand what it is like to survive a lifetime of masking and late burnout.
    my main difficulties:
    • the masking and people-pleasing trap: i worked for 31 years in construction as a chain man setting out, and later in manufacturing. because i was a "yes man" who found it hard to say no and always felt i had to prove my worth, i was heavily used and gaslit. i would do the job of three people, skip my breaks, and do out-of-hours airport runs for free just to be liked. it was a full-time job just pretending to be normal.
    • people anxiety and the terror of silence: people give me major anxiety because they are unpredictable. conversations feel like high-stakes work using stored scripts. strangely, i find sitting in silence with someone much harder than having to speak. when a conversation goes dead, my brain panics because there are no clear rules, and my mind starts racing, checking what they are thinking. i hate being on the phone or speaking in online playstation parties.
    • executive dysfunction and transition blocks: i get bad transition blocks when changing from one game to another or trying to do something unfamiliar. if i have to drive a route i don't know, i panic without a sat-nav and have to take someone with me.
    • adhd time blindness and object permanence: when i get into a good game, i hyperfocus for up to 13 hours, losing track of time, missing meals, and going to the toilet last minute. i also get caught in the "postal chase" on ebay, where buying something gives me a dopamine rush, but the second it arrives, the thrill goes. if a game or object is out of my direct sight, my brain completely forgets it exists.
    • addiction and my lightbulb moment: because doctors only diagnosed anxiety and depression all my life, i used alcohol through my teens and twenties to numb the social anxiety and fit in. it led to addiction and i spent all my savings—£25,500 in total—going in and out of private residential rehabs in blackpool. i did a long stint of sobriety from 2004 to 2019 using aa and na meetings, doing a lot of driving for my boss to keep me sober, but i never felt i fit in there because i couldn't find the underlying issue everyone else had. i relapsed in 2019 after a massive wave of grief where i carried 6 coffins in a short space of time, including my sister from cancer and my brother-in-law through suicide. after rehab in 2019, i watched a documentary about adhd and autism and had my lightbulb moment. i finally put a finger on it. knowing why i used alcohol made all the difference, and i've been sober ever since with zero desire to drink.
    • sleep issues and hyper-hearing: my brain never switches off and i don't sleep well. i usually get about 4 hours, then wake up with a recurring word or lyrics swirling round in my head like a broken record. i live in a renovated old mill apartment and have hyper-hearing—late at night when it's quiet, any tiny creak in the building makes me jump.
    • physical injuries and chronic pain: work demands completely broke my health. i have multiple spinal fractures, chronic osteopenia, and a fused ankle with zero movement in the joint. i can't walk up stairs or hills, use a walking stick for balance, and live with a lot of stabbing pains and burning sensations. i am frightened to death of spinal surgery, so i have to be incredibly careful not to fall.
    my strengths, collections, and safe sanctuaries:
    even though my life has been incredibly hard, my high intelligence is my shield. i use my love for structure and symmetry to turn my flat into a perfect visual museum to calm my anxiety:
    • my immaculate sorting systems: my flat is spotless and everything is set out in a uniform arrangement. i collect things from my past to heal childhood missing pieces and create order. i have 80-100 pairs of vintage designer masking jeans (armani, versace, gucci) neatly stacked, 80 lacoste djokovic polos in nearly every colourway, a rail of pristine deadstock 80s fila bj tracksuits, and rows of brand new dewalt tools stacked perfectly in tstak boxes that i will never use.
    • diecast cars and currency: under my tv, i have a row of all-red bburago ferrari cars in a perfect line, and more set out in a uniform diagonal arrangement on a two-tier glass table. i also collect bank notes and coins; i have historic christopher wren £50 notes, crisp euro notes, and a vast wad of used bank notes from all the world travel i did (new zealand, vietnam, brazil, rio for new year's eve 3 times). back when i could work, i was a serious athlete—i could do a 10,000m row in 43 minutes and swim a mile breaststroke (64 lengths) in a perfect, unbroken flow. i also donated 97 counts of platelets (triple donations) for alder hey children's hospital because i loved sitting in the chair for 90 minutes with nobody bothering me.
    • my high-tech safe zone: i have an elite solo gaming setup. i have nearly 7,000 trophies and 41 platinums on the ps5 (including the massive grinds of getting platinum on death stranding 1 and 2). i am currently hyperfocused cleaning up the planets on star wars outlaws. i love premium, clean electronics and run a cordless apple ecosystem with a macbook air on a stand, imacs from the newest right back to the original silver screens, an apple watch ultra, and a 65" samsung 4k qled tv.
    • sensory regulation: i regulate my nervous system by wearing oversized, heavyweight fleece jogging suits made by the brand comfrt (which i found through a youtuber called mom on the spectrum). i use weighted silk cushions to run my fingers over, and when the weather is nice and hot, i love going out for hours on my tga breeze s4 mobility scooter. i park up by a high playing field near my mum's, enjoy the breeze, and listen to joe rogan podcasts all afternoon in a 100% mask-free bubble.
    i am currently going to a tribunal with an advocate from the healthy minds charity to get my motability car back, after a telephone assessment unfairly stripped my mobility points because i gave a literal answer to a route question. i don't work anymore, i don't deal with other people's problems, and my mum helps me manage my money on a strict direct-debit system so my finances are totally safe from my ebay impulses.
    i am looking forward to looking through this forum and chatting with people who see the world the same way i do.
    thanks for reading.

Reply
  • hello everyone,
    i am a 53-year-old bloke born in 1972. i was recently diagnosed with audhd (autism and adhd), along with severe ocd, generalised anxiety disorder (gad), and sensory hypersensitivity to noise. like a lot of us gen x generations, i spent my whole life knowing i was different at school but had no knowledge or map for my own brain. i ended up at a grammar school and masked my way through 31 years of hard work, basically copying and pasting other people just to fit in.
    i am joining this forum to connect with people who understand what it is like to survive a lifetime of masking and late burnout.
    my main difficulties:
    • the masking and people-pleasing trap: i worked for 31 years in construction as a chain man setting out, and later in manufacturing. because i was a "yes man" who found it hard to say no and always felt i had to prove my worth, i was heavily used and gaslit. i would do the job of three people, skip my breaks, and do out-of-hours airport runs for free just to be liked. it was a full-time job just pretending to be normal.
    • people anxiety and the terror of silence: people give me major anxiety because they are unpredictable. conversations feel like high-stakes work using stored scripts. strangely, i find sitting in silence with someone much harder than having to speak. when a conversation goes dead, my brain panics because there are no clear rules, and my mind starts racing, checking what they are thinking. i hate being on the phone or speaking in online playstation parties.
    • executive dysfunction and transition blocks: i get bad transition blocks when changing from one game to another or trying to do something unfamiliar. if i have to drive a route i don't know, i panic without a sat-nav and have to take someone with me.
    • adhd time blindness and object permanence: when i get into a good game, i hyperfocus for up to 13 hours, losing track of time, missing meals, and going to the toilet last minute. i also get caught in the "postal chase" on ebay, where buying something gives me a dopamine rush, but the second it arrives, the thrill goes. if a game or object is out of my direct sight, my brain completely forgets it exists.
    • addiction and my lightbulb moment: because doctors only diagnosed anxiety and depression all my life, i used alcohol through my teens and twenties to numb the social anxiety and fit in. it led to addiction and i spent all my savings—£25,500 in total—going in and out of private residential rehabs in blackpool. i did a long stint of sobriety from 2004 to 2019 using aa and na meetings, doing a lot of driving for my boss to keep me sober, but i never felt i fit in there because i couldn't find the underlying issue everyone else had. i relapsed in 2019 after a massive wave of grief where i carried 6 coffins in a short space of time, including my sister from cancer and my brother-in-law through suicide. after rehab in 2019, i watched a documentary about adhd and autism and had my lightbulb moment. i finally put a finger on it. knowing why i used alcohol made all the difference, and i've been sober ever since with zero desire to drink.
    • sleep issues and hyper-hearing: my brain never switches off and i don't sleep well. i usually get about 4 hours, then wake up with a recurring word or lyrics swirling round in my head like a broken record. i live in a renovated old mill apartment and have hyper-hearing—late at night when it's quiet, any tiny creak in the building makes me jump.
    • physical injuries and chronic pain: work demands completely broke my health. i have multiple spinal fractures, chronic osteopenia, and a fused ankle with zero movement in the joint. i can't walk up stairs or hills, use a walking stick for balance, and live with a lot of stabbing pains and burning sensations. i am frightened to death of spinal surgery, so i have to be incredibly careful not to fall.
    my strengths, collections, and safe sanctuaries:
    even though my life has been incredibly hard, my high intelligence is my shield. i use my love for structure and symmetry to turn my flat into a perfect visual museum to calm my anxiety:
    • my immaculate sorting systems: my flat is spotless and everything is set out in a uniform arrangement. i collect things from my past to heal childhood missing pieces and create order. i have 80-100 pairs of vintage designer masking jeans (armani, versace, gucci) neatly stacked, 80 lacoste djokovic polos in nearly every colourway, a rail of pristine deadstock 80s fila bj tracksuits, and rows of brand new dewalt tools stacked perfectly in tstak boxes that i will never use.
    • diecast cars and currency: under my tv, i have a row of all-red bburago ferrari cars in a perfect line, and more set out in a uniform diagonal arrangement on a two-tier glass table. i also collect bank notes and coins; i have historic christopher wren £50 notes, crisp euro notes, and a vast wad of used bank notes from all the world travel i did (new zealand, vietnam, brazil, rio for new year's eve 3 times). back when i could work, i was a serious athlete—i could do a 10,000m row in 43 minutes and swim a mile breaststroke (64 lengths) in a perfect, unbroken flow. i also donated 97 counts of platelets (triple donations) for alder hey children's hospital because i loved sitting in the chair for 90 minutes with nobody bothering me.
    • my high-tech safe zone: i have an elite solo gaming setup. i have nearly 7,000 trophies and 41 platinums on the ps5 (including the massive grinds of getting platinum on death stranding 1 and 2). i am currently hyperfocused cleaning up the planets on star wars outlaws. i love premium, clean electronics and run a cordless apple ecosystem with a macbook air on a stand, imacs from the newest right back to the original silver screens, an apple watch ultra, and a 65" samsung 4k qled tv.
    • sensory regulation: i regulate my nervous system by wearing oversized, heavyweight fleece jogging suits made by the brand comfrt (which i found through a youtuber called mom on the spectrum). i use weighted silk cushions to run my fingers over, and when the weather is nice and hot, i love going out for hours on my tga breeze s4 mobility scooter. i park up by a high playing field near my mum's, enjoy the breeze, and listen to joe rogan podcasts all afternoon in a 100% mask-free bubble.
    i am currently going to a tribunal with an advocate from the healthy minds charity to get my motability car back, after a telephone assessment unfairly stripped my mobility points because i gave a literal answer to a route question. i don't work anymore, i don't deal with other people's problems, and my mum helps me manage my money on a strict direct-debit system so my finances are totally safe from my ebay impulses.
    i am looking forward to looking through this forum and chatting with people who see the world the same way i do.
    thanks for reading.

Children