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Anhedonia/alexithymia

Hergé

Hi.

I was diagnosed with depression and anxiety 3 decades before there was any mention of me being neurodivergent. When I was diagnosed with ASD and then ADHD-i I felt a brief sense of relief and then a weird feeling of grief mixed with anger. My depression is the dominant feature of my life, I just don't feel happiness or even positivity. I've been told that this could be something called Anhedonia or that I could have alexithymia and that I am experiencing happiness but I just don't recognise what I'm actually feeling, either way it's soul destroying.

I've been trying to get help through the NHS but I just not getting anywhere and it's really frustrating. 

Has or does anyone else experience this and if so, have you found anything that helps. With the other things going in my life right now I really need a win right now.

Anyway thanks in advance.

Hergé

Parents

  • Hi Hergé, and thanks for reaching out.  I'm sorry to hear you're struggling at the moment and that the NHS has not been helpful.  Anhedonia and/or alexithymia can be a common trait of autism for some people, and I'm sure our community members will have a lot of great anecdotal information for you.

    NAS does have some information available on depression here, if you would like to have a look at it.  It includes information on help on support you may like to try and access.

    You could also have a look at our Autism Services Directory to find services, such as counselling or therapies, in your local area that are specifically tailored for autistic people.

    I hope this helps, and wish you the best going forward.

  • in reply to Nicola Mod

    Thanks. It just seems that the system isn't set up to deal with ND people. I was diagnosed with depression and anxiety at 18 and ASD at 53, as soon as that happened they just weren't interested.

    For me the usual antidepressant meds and talking therapies just don't touch it. There must be more out there, there has to be!

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  • in reply to Nicola Mod

    Thanks. It just seems that the system isn't set up to deal with ND people. I was diagnosed with depression and anxiety at 18 and ASD at 53, as soon as that happened they just weren't interested.

    For me the usual antidepressant meds and talking therapies just don't touch it. There must be more out there, there has to be!

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