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Pain Clinic, waste of time

TheCatWoman

I had a call with the pain clinic earlier, I'd been waiting nearly 7 months for an appointment, I was supposed to speak to the consultant, but he wasn't in today, so I had a nurse instead, she was one of the most unsympathetic people I think I've ever spoken too and that takes some doing. Seeing that I'd been discharged before for something else, she asked 'what I expected from them this time?' That felt incredibly insulting, like I'm on at them all the time, I was refered this time for a different problem than before, I asked if it was possible that they had some different injections to the ones I normal have or if I could have them more often with a consultants recomendation

Parents

  • Sorry got signed out.

    But they dont' recomend injections at all now and dont' do them, they prescribe lifestyle changes instead along with the pain killers I can't take. I do all the things they suggest like taking exercise daily and getting out and about and not sitting around doing nothing.

    It's all well and good them deciding not to do certain treatments anymore but I think they should have something to offer in it's place, they've always encouraged lifestyle changes, last time they said I could teach them things rather than the other way around. 

     I feel left high and dry with nowhere to go with the levels of pain I endure on a daily basis, let alone when I have a bad day and when I go to stand, my shin bones feel like they're going to pop my kneecaps off. They don't do anything for fybromyalgia, she suggested I go to a comunity group that helps with lifestyle choices for fybro, nothing for osteo arthritis, just grin and bear it.

    If they have so little to offer is it any wonder that people try so many, often unregulated alternative treatments? Don't they understand that when you're in pain every day, thats uncontrolled, that people get desperate and that leaves them open to charletans and snake oil salesmen?

    Sorry I'm ranting again, but I'm fed up, I've spent years dealing with pain, with little or no help, trying everything I can to stay out of a wheelchair, now when I'm at the end of my resourses, there's nothing, no help, not even kindness.

  • in reply to TheCatWoman

    Sorry didn’t see this.

    I was taking a long time to continue my first reply as I am a bit distracted at the moment. 

    I don’t know where you could go or what you could do to get relief from the pain. The only thing I can suggest is to return to your GP and tell them what you have said here. There is kindness on this forum and I am hoping at least one of your family members is sympathetic and kind. I get that you are at the end of your tether but don’t give up hope or let that experience put you off. 

Reply
  • in reply to TheCatWoman

    Sorry didn’t see this.

    I was taking a long time to continue my first reply as I am a bit distracted at the moment. 

    I don’t know where you could go or what you could do to get relief from the pain. The only thing I can suggest is to return to your GP and tell them what you have said here. There is kindness on this forum and I am hoping at least one of your family members is sympathetic and kind. I get that you are at the end of your tether but don’t give up hope or let that experience put you off. 

Children
  • in reply to TheCatWoman

    Perhaps the consultant would have had more freedom to offer innovative treatment ideas but the nurse is likely to be limited in what she could suggest. I think the way the NHS is struggling at the moment means that many patients aren’t being offered the care they need to live as healthy a life as possible.

    I have been waiting nearly eight years for a surgical procedure that ‘may’ happen this year. Services are disjointed here and although the waiting list for adult autism assessments is many years long, the follow up care here is quite good for people with low support needs.

  • in reply to ArchaeC

    Everyone else but the pain clinic are really nice, next time I see my GP I will tell them about this, although there's nothing else they can do, they just help support me with my alternative and less than legal alternatives.

    I'm angry rather than dispairing, I think they've decided I'm to difficult and to ignore me.