Database for GP surgeries with autism experience

Hi,

this is going to be a kind of a long shot but I am posting this as a reaction to my GP appointment that I had this morning.

I am late diagnosed with autism and have had no support or treatment from any NHS department directly relating to my neurodiversity, apart from the lengthy process and waitlist to receive my diagnosis. On and off I have been with the mental health team to address my depression, anxiety and mood swings, and although I felt listened to in the initial first response team assessments and in the first two CBT sessions, they were unable to offer ongoing support, in their own words they chose to address the symptoms and not be bothered with the causes. One psychotherapist even bluntly said that if I was not progressing then that was because I wasn't trying hard enough to work on my condition!

Back to today's appointment, explaining to my GP that I had autism and was going through autistic burnout and circadian rhythm disorder, I directly asked if there was a GP that knew about autism and provide the adequate approach and support. His simple answer was no. I then asked if there was a database for GP surgeries that listed doctors or nurses specialised or experienced with autistic patients and he again said no and that I would have to do the field research work myself.

His response (forget about the lack of empathy)  shocked me. NHS databases exist to look up specialists such as dietitians, diabetic nurses, paediatricians, urologists etc. practicing at GP surgeries, they can even be filtered for patients requiring accessibility and Loop, but they throw a blind eye at people with autism or ADHD?

Any feedback or hints are much appreciated.  

Parents
  • [i]His response (forget about the lack of empathy)  shocked me.[/i]

    Doctors seldom have social skills. Don't take it personally.

    I think you'd be hard pressed to find a GP who specialises in autism. It is a bit of a specific speciality. You'd be more likely to find one with a particular interest in mental health in general.

    The surgery I just registered with currently has 23 doctors listed on their website. Only the business partners have specialities listed and they are limited to drug/alcohol misuse and paediatrics. A previous doctor I saw openly admitted that he wasn't an expert on Autism but that he had had autistic patients before, and did his best to help me. He also openly admitted to not being very good at orthopaedics when I needed a hip xray and he referred me to a suitably qualified consultant.

    They may not be particularly knowledgeable, but they should still be able to help you with your concerns, such as finding out about local NHS or council services (as well as charity or private services), although this may be something better delegated to a secretary.

Reply
  • [i]His response (forget about the lack of empathy)  shocked me.[/i]

    Doctors seldom have social skills. Don't take it personally.

    I think you'd be hard pressed to find a GP who specialises in autism. It is a bit of a specific speciality. You'd be more likely to find one with a particular interest in mental health in general.

    The surgery I just registered with currently has 23 doctors listed on their website. Only the business partners have specialities listed and they are limited to drug/alcohol misuse and paediatrics. A previous doctor I saw openly admitted that he wasn't an expert on Autism but that he had had autistic patients before, and did his best to help me. He also openly admitted to not being very good at orthopaedics when I needed a hip xray and he referred me to a suitably qualified consultant.

    They may not be particularly knowledgeable, but they should still be able to help you with your concerns, such as finding out about local NHS or council services (as well as charity or private services), although this may be something better delegated to a secretary.

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